Recommendations
Recommendation 1
For the purposes of further examination of the issues, the committee
recommends consideration of the following options:
- Creation of a national working party. The appropriate Commonwealth
departments would be tasked with the administration of the consultation
process, and the establishment of a working group including State and
Territory representatives, experts and representatives of stakeholder
groups.
- That the Commonwealth Government give consideration to a reference
to the Senate Legal and Constitutional References Committee to undertake
a thorough examination of the issues relating to genetic privacy and
discrimination, including consideration of insurance, employment, provision
of goods and services, clinical diagnosis and treatment, conduct of
medical and other research and genetic information concerning children.
- An ongoing responsibility for the appropriate Commonwealth departments
to monitor developments, with a view to drafting legislation as required.
[paragraph 5.18]
Recommendation 2
The committee therefore recommends that the bill not proceed,
pending the further examination of the issues as recommended above and
the development of appropriate amendments to existing legislation, in
relation to genetic privacy and discrimination. [paragraph 5.32]