Recommendation 1
5.99 The
committee notes the strong potential of mitochondrial donation to address the
debilitating effects of inheriting mitochondrial disease. The committee
recommends that public consultation be undertaken regarding the introduction of
mitochondrial donation to Australian clinical practice. To facilitate this
consultation, the committee further recommends the Australian Government
prepare a consultation paper, including options for legislative change that would
be required. The Minister for Health should seek advice from the National
Health and Medical Research Council on the most appropriate timing and format
for this consultation.
Recommendation 2
5.100 The
committee recommends that the Australian Government task the National Health
and Medical Research Council with advising on the following questions:
-
Whether mitochondrial donation is distinct from germline genetic
modification.
-
Is there any new information to indicate that research findings
from the United Kingdom, that the science of mitochondrial donation is safe for
introduction into controlled clinical practice, cannot be applied in an
Australian context?
-
Whether other approaches to inheriting mitochondrial disease
should also be the focus of Australian research.
5.101 The
committee recommends the findings be used to inform future legislative process.
Recommendation 3
5.103 The
committee recommends the Minster for Health take the findings of this report to
the Council of Australian Governments (COAG) Health Council to progress the
implementation of this report's recommendations with the states and
territories.
Recommendation 4
5.104 The
committee recommends, noting the need for community consultation and scientific
review, the urgency of treatment for current patients and the small number of
patients seeking this treatment, that the Australian Government initiate
dialogue with the relevant authorities in the United Kingdom to facilitate
access for Australian patients to the United Kingdom treatment facility as an
interim measure.
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