Issues raised in evidence
Introduction
3.1
This chapter provides an overview of activities conducted during the
year by the Joint Standing Committee on the National Disability Insurance Scheme
(the committee). It also considers the main issues raised in evidence to date to
the committee's inquiry into general issues around the implementation and
performance of the National Disability Insurance Scheme (NDIS or the Scheme). The
chapter concludes with the committee's view and recommendations.
3.2
Concerns focused on the National Disability Insurance Agency's (NDIA) planning
process, lack of transparency and responsiveness, reductions to plan funding, development
of non-contextual pricing for services, portal issues, transport market design,
and the early childhood intervention pathway. The committee is pursuing early
childhood intervention issues through a new inquiry that is scheduled to report
in December 2017.
3.3
While the committee is concerned about the issues of pricing and
workforce development, it will carefully review the Productivity Commission's
final report before taking further action.
Committee activities
3.4
As part of its role to inquire into the implementation, administration,
and expenditure of the NDIS, the committee agreed to inquire into and report on
four specific NDIS-related issues:
- the provision of services under the NDIS for people with psychosocial
disabilities related to a mental health condition;
-
the provision of hearing services under the NDIS;
-
the provision of services under the NDIS Early Childhood Early
Intervention (ECEI) Approach; and
-
the transitional arrangements for the NDIS.
3.5
An overview of each inquiry's terms of reference is as follows.
Provision of services under the
NDIS for people with psychosocial disabilities
3.6
On 30 November 2016, the committee agreed to inquire into and report on
the provision of services under the NDIS for people with psychosocial
disabilities related to a mental health condition, with particular reference
to:
- the eligibility criteria for the NDIS for people with a psychosocial
disability;
-
the transition to the NDIS of all current long and short term mental
health Commonwealth Government funded services, including the Personal Helpers
and Mentors services and Partners in Recovery programs, and in particular;
- whether these services will continue to be provided for people deemed
ineligible for the NDIS;
- the transition to the NDIS of all current long and short term mental
health state and territory government funded services, and in particular;
- whether these services will continue to be provided for people deemed
ineligible for the NDIS;
-
the scope and level of funding for mental health services under the
Information, Linkages and Capacity building framework;
-
the planning process for people with a psychosocial disability, and the
role of primary health networks in that process;
-
whether spending on services for people with a psychosocial disability
is in line with projections;
-
the role and extent of outreach services to identify potential NDIS
participants with a psychosocial disability; and
- the provision, and continuation of services for NDIS participants in
receipt of forensic disability services.
3.7
The committee received 131 submissions to the inquiry. The committee
conducted four public hearings; one in Melbourne, two in Canberra, and one in
Penrith. Submissions, details of hearings, and additional information received
are available on the committee's website. The committee tabled it report in
Parliament on 15 August 2017. A copy of the report is available on the
committee's website.
Provision of hearing services under
the NDIS
3.8
On 30 November 2016, the committee agreed to inquire into and report on
the provision of hearing services under the NDIS, with particular reference to:
-
the eligibility criteria for determining access to, and service needs
of, deaf and hearing impaired people under the NDIS;
-
delays in receiving services, with particular emphasis on early
intervention services;
-
the adequacy of funding for hearing services under the NDIS;
- the accessibility of hearing services, including in rural and remote
areas;
-
the principle of choice of hearing service provider;
-
the liaison with key stakeholders in the design of NDIS hearing
services, particularly in the development of reference packages;
-
investment in research and innovation in hearing services; and
-
any other related matters.
3.9
The committee received 55 submissions to the inquiry. The committee
conducted two public hearings in Melbourne on 20 February and
24 March 2017. Submissions, details of hearings, and additional information for
this inquiry are available on the committee's website. The committee had
intended to provide its report to Parliament by 22 June 2017; however, it agreed
to extend the reporting date to September 2017.
Provision of services under the
NDIS Early Childhood Early Intervention Approach
3.10
On 21 June 2017, the committee agreed to inquire into and report on the
provision of services under the NDIS ECEI Approach, with particular reference
to:
- the eligibility criteria for determining access to the ECEI pathway;
-
the service needs of NDIS participants receiving support under the ECEI
pathway;
-
the timeframe in receiving services under the ECEI pathway;
-
the adequacy of funding for services under the ECEI pathway;
-
the costs associated with ECEI services, including costs in relation to
initial diagnosis and testing for potential ECEI participants;
-
the evidence of the effectiveness of the ECEI Approach;
-
the robustness of the data required to identify and deliver services to
participants under the ECEI;
-
the adequacy of information for potential ECEI participants and other
stakeholders;
-
the accessibility of the ECEI Approach, including in rural and remote
areas;
-
the principle of choice of ECEI providers;
-
the application of current research and innovation in the identification
of conditions covered by the ECEI Approach, and in the delivery of ECEI
services; and
-
any other related matters.
3.11
The committee agreed to conduct public hearings across the country and
to report to Parliament by 6 December 2017.
Transitional arrangements for the
NDIS
3.12
On 21 June 2017, the committee agreed to inquire into and report on the
transitional arrangements for the NDIS, with particular reference to:
- the boundaries and interface of NDIS service provision, and other
non-NDIS service provision, with particular reference to health, education and
transport services;
-
the consistency of NDIS plans and delivery of NDIS and other services
for people with disabilities across Australia;
-
the rollout of the Information, Linkages and Capacity Building Program;
and
-
any other related matters.
In considering these issues, the
committee will have regard to:
- the Bilateral Agreements between the Commonwealth and State and
Territory Governments;
-
the Operational Plans between the Commonwealth and State and Territory
Governments;
-
the risks borne by the Commonwealth and State and Territory Governments
in the rollout of the NDIS nationally;
-
NDIS decision-making processes, particularly in relation to the
Disability Reform Council and COAG; and
-
the impact on rural and remote areas, with particular reference to
indigenous communities.
3.13
The committee agreed to conduct public hearings across Australia and
provide its report to Parliament by 7 December 2017.
Private briefings
3.14
In addition to conducting inquiries, the committee received private
briefings from a number of relevant agencies during the year, including the:
-
Department of Social Services (DSS);
-
National Disability Insurance Agency;
-
Scheme Actuaries; and
-
Australian National Audit Office.
3.15
The Productivity Commission is expected to brief the committee in November
2017.
General issues
3.16
From its inception, the committee received valuable evidence from a
range of individuals and organisations which did not fall under the four specific
areas of inquiry. The committee agreed to capture this material through an
inquiry into general issues related to the implementation and performance of
the NDIS.
3.17
The committee advertised its interest in receiving information and submissions
from those involved in the Scheme on its
website. The committee continues to welcome information from people in any
capacity on their experiences of the implementation and performance of the NDIS
to date. It is the committee's intention that future progress reports will
consider the evidence on a rolling basis as the Scheme continues to expand.
3.18
As at 7 August 2017, the committee received 17 submissions for this
inquiry. Submissions are listed at Appendix 1 and are available from the
committee's website: http://www.aph.gov.au/Parliamentary_Business/Committees/Joint/National_Disability_Insurance_Scheme/General_NDIS.
3.19
The committee held three public hearings on 12 May, 17 May, and 28 July
2017. The first two hearings, held in Canberra and Penrith respectively,
gathered varied evidence on general NDIS issues. At a final hearing in
Melbourne, the committee heard from officials of the NDIA. A list of witnesses
who appeared at the hearings and the Hansard transcripts is available at
Appendix 2 and on the committee's website.
3.20
Responses to questions on notice and additional information were also
received. This information is listed at Appendix 3 and is available on the
committee's website.
Acknowledgements
3.21
The committee thanks all those who contributed to the general issues inquiry
by lodging submissions, providing additional information, or expressing their
views through correspondence. The committee acknowledges those who gave their
time to attend the public hearings and give evidence.
Access to the Scheme
3.22
As noted in Chapter 2, plan approvals compared to bilateral estimates
are significantly behind. In 2016–17 a total of 60 357 participants entered
the Scheme and received an approved plan. In addition, there were 6134 children
with a confirmed referral to the ECEI gateway. These figures represent 83 per
cent of the cumulative bilateral estimates.[1]
According to the NDIA's own report, only NSW and Victoria are meeting
expectations.[2]
3.23
Furthermore, accessing the NDIS and accessing services under the Scheme
appear to be two very different things. Across all the states and territories
there are
25 857 participants waiting for a plan, with 14 152 in NSW alone.[3]
Despite the urgency of individuals' circumstances, the committee heard various
accounts of extensive delays between when a participant's Access Request is
granted and their first planning meeting is scheduled:
Now that he has been approved as a participant we are waiting
for the planning process to start. We are still waiting four months on, and we
still have no notice of a planning meeting.[4]
3.24
Of particular concern to the committee is that a large number of
submissions to the committee's Early Childhood Early Intervention and provision
of hearing services under the NDIS inquiries raised similar concerns, as access
to intervention services is crucial during a child's developmental years.
Planning issues
3.25
A significant portion of evidence focused on the inefficiency of the Agency's
planning process. Participants, their families, carers, and service providers expressed
dissatisfaction with plans being developed over the phone; the skills and
competence of planners; inconsistency of planning decisions; delays to plans
and plan reviews; and the Agency's lack of transparency.
Plans being developed over the
phone
3.26
The committee repeatedly heard negative feedback from participants' whose
plans had been developed or reviewed by NDIA planners over the phone. The
committee agrees that this form of communication is inappropriate in the
circumstances described by witnesses. For example, participants were unaware
that their plan was being developed over the phone, called unexpectedly, or
rushed during the conversation. Crucially, this method of communication does
not allow for accurate information transfer during critical plan development.[5]
Skills and competence of planners
3.27
The evidence received indicates that NDIA planners do not possess a sufficient
level of disability knowledge to effectively carry out their roles and
responsibilities. The committee heard suggestions that planners lack an understanding
of the NDIS legislation and its objectives, and have disregarded advice from
participants, carers, and medical professionals during key decision-making.[6]
3.28
Issues concerning the skills and competence of planners do not appear to
be isolated occurrences. Repeatedly, the committee heard that planners had
developed plans which were not representative of participants' needs.[7]
While restrictions in the planning process—such as not being able to identify
when a question is not applicable—were identified as potential causes of
inappropriate plans, planner capability emerged as the primary concern.
3.29
Seemingly, planners and other Agency staff have not been trained to
understand the different disabilities or needs of participants. The committee
heard that employees were having difficulty understanding basic disabilities as
well as complex ones. For example, staff were unable to assist a participant
with vision impairment:
This lady is a blind person, like me, and has spoken of her
experience: ...when talking to staff, the staff not treating her with respect,
and not understanding simple things like that she wants documents in a readable
format and not understanding things like giving her a document in Word format
instead of RTF or PDF—not understanding those concepts.[8]
3.30
In Ms Georgina Ovin's case, the Agency was unable to provide her with
routine information about orthotics:
...my son...needs orthotics for his feet and specialised shoes,
which cost between $285 and $315. We could not get a direct yes or no answer as
to: were the orthotics included under general funding or considered as
assistive technology? That is a question that you would think would be quite
simple.[9]
3.31
The NDIS Act
sets out how a participant's individual, goal-based plan is prepared and
reviewed and how the NDIA approves the funding of reasonable and necessary
supports. However, the committee received reports that Agency staff may be
failing to adhere to the legislative requirements contained in the Act. Mr
Richard Goward, Director, Orthotist and Prosthetist, argued that planners appear to be dismissing
the legislative terms of 'reasonable' and 'necessary' and replacing them with
'ordinary life'.[10]
Mr Goward questioned how the criteria that defined an 'ordinary life' was
developed and how it related to the terms 'reasonable and necessary'.[11]
In further correspondence with the NDIA[12]
he was directed to the Independent Advisory Council's paper[13]
setting out the development of the term and how it would be used to determine
what constitutes 'reasonable and necessary support'. However, the legislative
status of the concept is not set out in that advice.
3.32
The Agency was criticised for not ensuring that planners are
appropriately and consistently trained before being given the responsibility of
creating plans that will affect the lives of participants and their families.[14]
Mr Kevin Rangi, Director, Therapies for Kids, argued that the abilities and skills
of planners can make a considerable difference to participants' outcomes:
When we have questioned the parents or caregivers about the
process they experienced which resulted in what they have received in their
approval, the answers we received indicate that it is dependent upon who they
have allocated to assist them from the LAC pool and who they finally get as
their NDIA planner. Where either of these persons have little or no clinical
expertise, the ability to competently assess the ongoing and future clinical
needs of the child is compromised.[15]
3.33
NDIS plans that do not meet the needs of participants can have serious
consequences. Ms Kylie Wicks, General Manager Clinical Services, ParaQuad NSW
and BrightSky Australia, raised the question of how the NDIA plans to address
medical complications that have occurred as a direct result of poor care.[16]
3.34
The insensitivity of NDIA staff towards people with disability during
the planning process was also the subject of criticism.[17]
Participants recounted feeling threatened by planners, and observed that the
process can feel hostile at times, rather than supportive:
In a system trying to improve people's wellbeing, I find
being asked to focus on the negative aspects of my health distressing,
depressing and counterintuitive. When my plan was recently reviewed in what I
can only describe as a 2½-hour interrogation, I once again had to rehash
everything to another planner, who was threatening and unsupportive. This is a
hostile process, where the system requires you to prove your entitlement to
services rather than offering empathy and support.[18]
Disregard for medical assessments
and carers
3.35
The committee heard concerns that planners with little or
no relevant training or knowledge are rejecting clear advice from clinicians and
carers and making adverse decisions that they are not qualified to make.[19]
Evidence indicated that, 'in the initial stages, the LACs and planners were
discouraged from being influenced by clinical reports provided by service
providers'.[20]
Apparently, the medical
assessments provided by treating health professionals, to assist in the
creation of appropriate plans, are being disregarded during planning:
Many people have said today that it is very difficult for
planners to understand the complexities across every disability. The
participant group that I deal with is incredibly complex and has very unique
roles. Even within the group not every amputee, not every child requiring a
mobility device will be the same as the next. I understand this complexity. This
is why I provide incredibly comprehensive reports to assist these assessments
by planners. Yet agency decisions are ignoring or dismissing the assessments
and recommendations of me as a treating health professional. Agency decisions
are not reflecting the current best practice or promotion of high-quality and
innovative supports, which is mentioned at multiple stages.[21]
3.36
An inefficient planning process can have serious effects on the participant
as well as their community. According to Carers ACT, there has been an increase
in carer hardship under the Scheme:
We have seen a significant increase in carer distress under
the NDIS in carers who are no longer able to continue to achieve their goals,
who have ended employment, who have increased suicidality and increased
thoughts of murder towards the person they are caring for or of relinquishment.
The carer is the absolute foundation to this system, and yet they are probably
the most ignored in it. [22]
3.37
In a survey conducted by Carers ACT, carers expressed dissatisfaction
with the planning process and indicated that they had been ignored during
planning.
Ms Lisa Kelly, Chief Executive Officer, Carers ACT presented the findings to
the committee:
Twenty-three per cent of carers...felt their input was not
respected or valued indicated that the NDIS participant plan was not aligned to
the needs of the person they cared for, compared to only four per cent who felt
their input was valued and respected.[23]
Opportunity to review plans before
implementation
3.38
The committee heard several accounts where participants and their
families had not been given an opportunity to review their plans before
implementation.[24]
The current planning process requires participants to first sign off on their
unsuitable plan before they are able to request a review. Evidence to the
committee indicated that this is an inefficient process, as plan reviews can
sometimes take months to occur, leaving the participant at risk of being unable
to meet their daily needs. Similarly, participants reported that the NDIA had
not provided enough time between the expiry of one plan and the implementation
of the next for participants and their carers to provide feedback.[25]
Inconsistencies in planning
decisions
3.39
The committee received evidence which indicated that NDIA staff do not
have access to clear policy and procedure.[26]
Participants and their carers expressed dissatisfaction at the inconsistency
of decisions, capability and training, and highlighted the inefficiency of not pairing
planners with a regular group of participants. Lack of case familiarity
compounded with unclear guidelines for decision making appears to have placed
considerable pressure on participants and providers who face uncertainty in
essential funding, equipment, and services.[27]
For example, in one case, identical information had been provided to the Agency
yet staff members reached different decisions.[28]
3.40
The committee heard that participants in ostensibly similar
circumstances received different funding in their plans:
...we have witnessed a number of inconsistencies where client
patients who have the same condition and severity grade and who should receive
the same intensity and regularity of treatment in fact receive marked
differences in funding for the treatment.
We have been able to compare what one participant has had
approved for a recommended treatment and frequency of treatment to what another
participant who has been approved to achieve the same or substantially similar
clinical outcomes, and there are obvious and large variances. With these client
patients, the quantum of dollars approved in the participant's plan would
appear to be of little relation to the patient's clinical needs. The only other
variable factor is that the LAC personnel, the NDIA planner or both have little
or no appreciation of the clinical requirements of the participant they are
assessing.[29]
3.41
The unpredictability of decision making was experienced by clients of
Ms Donna-Maree Law, NDIS Specialist, Disability, Ageing and Community Care
Service, who argued that inconsistency causes unnecessary stress and confusion:
Participant 3 is a gentleman who was very fortunate. His
equipment was approved and purchased in February of this year. On 7 May—last
Sunday—he received quite a confusing email. I am just going to read out the
wording for you so that it is on record: 'The request for the NDIS to fund the
Raizer lifting chair will not be approved as it does not represent value for
money compared to the cost of alternatives such as modified transfer techniques
and utilising suitable transfer equipment to minimise falls. I understand that
you are aware how to implement correct transfer techniques and minimise the
risk of falls. The provision of the Raizer lifting chair may encourage
risk-taking behaviour and non-adherence with correct transfer technique and
safe mobility. If the current method of transfers and mobility is not safe,
then corrections and modifications should be made to the techniques and methods
to ensure that the wheelchair is able to be used safely.' This is three months
after the gentleman was approved and has been using this vital equipment in his
life. These are the confusions people are dealing with day in and day out.
People are stressed and confused.[30]
3.42
Inconsistency between local and national NDIA decisions was also brought
to the committee's attention. Mr Goward described how decisions made by the
Agency during the trial period changed after the rollout:
We have a 16-year-old boy who was approved for a trial of a
prosthetic device prior to the national rollout. He was approved for trial of a
device by the local office. It was deemed reasonable and necessary to provide
this for a trial. The trial was incredibly successful beyond anyone's wildest
dreams. The amount of difference that this device made to this young boy's life
was incredible. The outcome of the trial was resubmitted to recommend the final
implementation of this device, and the review panel of the now national Scheme
said it was not reasonable and necessary...The prescription guidelines and the
legislation have not changed and yet the decision has been effectively reversed
by the national review board.[31]
Unacceptable delays
3.43
A correlation between the commencement of the Scheme's national rollout
and delays in the Agency's responsiveness emerged during the community sessions
of the committee's hearings. In addition to the delay between access and
service provision discussed earlier in this chapter, participants consistently
reported lengthy delays in receiving plans, plan reviews, and other information
from the NDIA.[32]
Ms Tan highlighted that individuals are placed at an increased risk of delayed
recovery, financial pressure, and emotional distress when delays occur:
In my husband's case, it is an illness. There is recovery
that happens after an illness and there is momentum to that recovery, and any
delay in this planning, which then gives us money to access services for him,
delays his recovery, which then affects his mental health, which means he is a
less productive member of society. We are waiting for car modifications for
him, which we cannot do until we get that funding...[33]
3.44
Some argued that the Agency's staffing levels were not sufficient to
implement the transition on 1 July 2016,[34]
while others attributed declining responsiveness to a suspected lack of formal
guidelines for staff to adhere to.[35]
3.45
In some cases, poor responsiveness considerably impacted participants,
their families, and carers, with several describing their distress at being
disregarded by the Agency.[36]
Excessive wait times also forced some participants to visit their local NDIS
offices in person, which can be difficult for those with a disability:
Like other people here, I spent hours on the phone, trying to
access the plan. On many occasions, this involved excessive waiting times. If
the call connected, it was immediately disconnected. You try lodging a
complaint and, again, it is ignored. You wait excessive times before you
actually find any sort of resolution. To find a resolution, I needed to go into
the office, which, as a person with a disability, was difficult and hard to do.[37]
Lack of transparency
3.46
Lack of transparency during the planning process was also the subject of
criticisms.[38]
According to witnesses, key aspects of the planning are not communicated in
advance, making it difficult for participants to make informed decisions.
3.47
Participants reported being unsure how to request medical assessments
during the formulation of their plans, while others were confused as to how certain
decisions had been reached by their planners.[39]
Dr Damien Palmer found it difficult to extract information from the Agency when
he sought an explanation for his daughter's plan:
When we received a copy of my daughter's plan in early
November, it was full of surprises...The statement of goals bore little
resemblance to anything said in the planning meeting, and there was no clear
explanation regarding the decision-making process that had led to the plan we
had received. I sought clarification about the decision-making process, but,
with no direct access to the planner, this proved to be a fruitless exercise...[40]
3.48
Contributors argued that people do not have access to necessary
information as there is limited information publically available on the
planning process or the role of planners.[41]
Mr Buckley argued that there is no clear division of responsibilities between
individuals, planners, and plan managers:
We cannot tell what a planner is meant to do in detail nor
what processes planners use in developing individual plans: the NDIA does not
describe publicly the planners' role or report on equity in planning. It is
unclear what information NDIS planners need and how they turn information
received about an NDIS participant into an NDIS plan for the individual. It is
not clear what information belongs in a NDIS plan for an individual and what is
really up to the individual or plan manager to decide.[42]
3.49
Participants observed that practical explanations and a breakdown of
items were often missing from plans.[43]
This has caused vital information to be missed as participants struggle to
interpret their plans:
In previous years, under core supports, for example, we had a
dollar value which did not include the in-kind support for education. My son
goes to a mainstream school and goes to a learning support unit there. In-kind
support was stated as zero in previous plans and in this plan it has been given
a dollar amount. Unless I had gone through the switchboard and asked the
relevant questions, I would have thought that funding was for core support and
possibly would have committed to service plans et cetera that would have spent
that money, which we have no access to, during the year. We also cannot see the
breakdown of what we have been allocated for different therapies, capacity
building and daily activities, which is also quite frustrating because, until
the point where I got the breakdown, I did not realise that speech and OT were
also missing.[44]
3.50
Impractical language and format has contributed to the indecipherability
of plans. Some of the challenges were underscored in the evidence from Ms Sue
Werner, Networks Manager, Community Connections Australia:
I can see a lot of people who look at their plans and go,
'This doesn't make sense to me.' I ran a workshop and I had a father who took a
day off from his work. He is a barrister and he said: 'I've come here wearing
shorts because I'm not working today. I read really complex documents all day
and I cannot make sense of my daughter's plan.' I have looked at plans where we
get lots of questions. There are things in there like, 'This will be funded,
which is R&N.' What does R&N mean? The person asked me, and this person
does not have an intellectual disability. 'Does that mean I have a registered
nurse that is going to be coming?' It was the shortening of 'reasonable and
necessary'.[45]
3.51
The reluctance of NDIA staff to provide clear advice in writing was also
the subject of criticism:
...when we ask for advice from the NDIA, they are more than
happy to give their opinions or advice but they are not happy to put it in
writing at all. I have a big issue with that. It is the same issue with
guidelines for assistive technology; I do not think that they are terribly
clear and they are changing all the time.[46]
3.52
Participants requested that the NDIA make publically available all
necessary information for participants and providers in the Scheme to minimise
the frustration borne by 'vague fact sheets, inconsistent advice, and a
bewildering process'.[47]
Decreases to plan funding
3.53
A significant portion of evidence indicated that plan reviews had sparked
unnecessary reductions in participant funding. In several cases brought to the
committee's attention, funding had been reduced by the Agency without reason or
had been reduced because the participant was deemed to have improved.[48]
In one case, plan funding had been reduced by the Agency because all of the
allocated funds had not been used within the year, and in another, funding had
been reduced because the allocated monies had not been used within the period,
despite the fact the participant had been unable to access their funds due to
Agency error.[49]
3.54
Ms Cassandra Hanbridge, Partner and Social Worker, Making Connections
Together, told the committee that several members of her organisation had
similar experiences of funding being reduced regardless of circumstances or
needs:
The thing I am hearing as a coordinator when I go and support
families at a lot of these meetings is: 'Your plan has to be less than last
year. It has to be reduced. You have to have less funding. You have to have
improved.' It takes a long time for people with disabilities to improve, and it
takes a long time for a young kid with multiple disabilities—autism and mental
health—to improve. It does not happen in 12 months. It is not going to happen
in 12 months. You are talking three or four years before this guy's supports
are going to reduce. The pressure on the families I am seeing, as a provider,
makes me feel so sad for the families I am supporting. I hear them have the
pressure of: 'Your plan has to be less. Your coordination hours have to be
less. You have to be more self-dependent. You have to have less funding. We have
to reduce this plan.'[50]
3.55
According to Ms Anne Kirwan, Chief Executive Officer, CatholicCare
Canberra and Goulburn, the NDIA's Director of Services advised that plans were
being reviewed and funding being reduced as the Agency had been overgenerous in
the ACT.[51]
3.56
As the largest group that will transition people to the NDIS, the
committee sought the NSW Government's input on whether it had received similar
concerns on decreases in plan funding to those raised by participants in the
ACT. Ms Samantha Taylor, Executive Director NDIS Implementation, NSW Department
of Family and Community Services, advised that only a small portion of people
in NSW had their funding decreased:
From a state perspective, we actually cannot see that data.
So I just preface my response with that note. However, we have looked at where
people have had a number of different iterations of their plan. We had a look
at about 8,000 as a sample. Over the number of people who have had more than
one plan in their participation in the Scheme in New South Wales, out of 8,000
people only 10, from what we could see, had had a financial adjustment
downwards in their plans.[52]
3.57
The committee received suggestions that the Agency should review its
current plan funding model and processes to provide participants with more
stability and certainty in the future. Indeed, Ms Tan argued that funding
should be provided for longer than one year at a time:
You need planning time and, with a disability, it takes time
to improve. By the time you have got your plan and you have appealed it if it
was not correct, you then have to find a provider who agrees to take you on.
They accept and then make an assessment of what the person's needs are. By the
time they have come in and done all that, there is not enough time to spend the
money you have been allocated for that year and time has passed. So we need to
seriously consider if we can make the funding a longer time, three years at
least. A year is just long enough, with the delays in the process, to achieve
anything with that money you have.[53]
Agency response to planning issues
3.58
As previously discussed, the Agency has been working to improve its planning
process by reviewing participant and provider pathways.[54]
However, it has not indicated whether the results of its review would be published.
Reductions to plan funding
3.59
In response to reports of gradual and unjustified reductions to
participants' plan funding, the NDIA assured the committee that no direction
was in place to reduce plan costs and that there is no mechanism for automatic
decreases to plan funding each year.[55]
It did, however, note that 'the evidence to date...indicates that opportunities
for community inclusion are growing, thereby enabling participants to fulfil
goals through connection to everyday activities rather than specialised
supports'.[56]
3.60
With regards to cases where allocated funds were unable to be used by
participants due to IT issues, the NDIA asserted that it 'considers utilisation
of plans and the factors contributing to this as part of the plan review...planners
work with participants to identify any IT specific barriers to plan utilisation
and claiming to develop solutions to address these'.[57]
Planner training and quality
assurance
3.61
The NDIA addressed some of the quality assurance concerns raised by
participants. The NDIA's Chief Operating Officer, Mr Grant Tidswell, provided an
update on the progress of the Agency's participant and provider pathways review,
which has connected with approximately 300 individuals to date:
We've identified over 300 pay points. We are well on the way
to thinking our way through what we need to do about those pay points so we can
come back and tell stakeholders more broadly about what we're doing about it.
We haven't landed that yet. We're still in the process of working through
options and thoughts and ideas, and then we'll come back to the board with a
plan on how we will deliver that in the next little while. Our goal would be to
finalise our thinking through August and then we'll come back with an approach
for the rest of this financial year.[58]
3.62
The Agency was cognisant of general dissatisfaction with plans and the
planning process, and advised that it had commenced revised refresher training
for all staff in response to issues raised.[59]
Ms Stephanie Gunn, Acting Deputy Chief Executive Officer—Participants and Planning Group, explained that the
Agency conducts regular planner training on a monthly basis, but that the
Agency is developing disability understanding across its network and that
subject matter experts would be made available for staff to refer to if needed.[60]
Ms Gunn spoke to the Agency's management of systemic quality assurance issues,
noting that quality teams had not been fully operational at the commencement of
the national rollout:
We've now instigated a quality management framework across
all our sites, which basically looks at the identification of issues, uses all
of the standard tools about peer based supports, draws examples out, uses case
studies, uses both risk assessed and random sampling of decisions and actions
both predecision and postdecision, explores that, and spreads those lessons out
across our network to try and develop a much more consistent approach to the
decisions. Where we see a systemic lack of understanding about the way in which
a particular decision should be applied in a particular circumstance, we will
pull that out and then develop a training module. Our quality teams within each
of the regions, which were not fully operational in July of last year, are now
up and running and their job is to take those training modules and wash that
over all of our staff.[61]
3.63
Agency officials also pointed out that it seeks to retain experience and
knowledge in the sector, and has in place a 'first offer' recruitment
arrangement for staff from state and territory disability systems.[62]
The NDIA reassured the committee that it has a sufficient number of planners,
has filled all positions, and has been recruiting on time and ahead of schedule
across all regions.[63]
3.64
The Agency discussed the criticism of its planning questionnaire,
explaining that the Agency is using the information to build a base to guide
its typical packages going forward, as well as enable consistent measuring of
outcomes for the Scheme overall.[64]
Ms Gunn advised that, as the Scheme evolves and engages with more people, the
Agency would be able to refine the questionnaire for particular cohorts.[65]
Mr Tidswell stressed that all material, such as guidelines and templates, are
under active consideration.[66]
Trial phase vs rollout planning process
3.65
Agency officials also addressed the alleged difference between quality
of plans and service delivered pre 1 July 2016 and post national rollout of the
Scheme. Ms Vicki Rundle, Acting Deputy Chief Executive Officer—Markets and
Supports, explained that the Agency had introduced a new planning process from
1 July 2016 because the 'bottom-up' planning process used during trial phase would
not have been feasible on a national scale.[67]
3.66
The original bottom-up process provided plans with line-by-line supports
and was criticised as 'a very prescriptive way for a person to have to use
their funds—for example, they only got X number of hours for therapy or X
volume of time for house assistance'.[68]
As a result, the Agency changed typical support packages by dividing them into
three types of supports—core supports, capacity building and capital—to enable more
flexibility:
The core supports are all the daily living types of
assistance a person might need, and you can track that quite closely to a
person's disability type. The planner's responsibility is to adjust that for
the person's circumstances. Within the core supports, you have complete
flexibility in the way in which you apply that in the volume and how you use
those funds.[69]
3.67
Mr Tidswell argued that the updated process sets parameters to guide the
planning conversation and ensures consistency across similar cases while still
allowing plans to meet the needs of individuals.[70]
The Agency noted that the support package framework would be adapted as
evidence for the Scheme builds.[71]
Inconsistency of decisions
3.68
In light of criticisms around inconsistent decision-making, the Agency
sought to assure the committee that planners' decisions are carefully
controlled. A customised ICT system supports the Agency's business assurance framework
by regulating key decisions, such as those enabling access to the Scheme;
approving plans; and granting provider registrations.[72]
Ms Rundle explained that these decisions are tested against a sample of others
for consistency and that 100 per cent of less-experienced planners' decisions
are assessed by senior planners' before approval.[73]
Plan reviews
3.69
The Agency addressed concerns that participants had lost access to
services due to plan reviews. It explained that a plan review is usually
scheduled as the plan end date approaches and are usually held once every 12
months. Once a plan review is initiated, the next cycle of pre-planning and
planning tasks is commenced to develop the participant's new plan. Individual
assessments and therapy reports are reviewed for evidence of outcomes and may
be requested to inform the review if not available. The Agency conceded that,
for a small cohort, a plan may expire before a review can be completed, and has
been predominantly due to participants being unable to be contacted or a delay in
receiving requested information. It explained the options available in these
circumstances:
In instances where the NDIA is unable to complete a scheduled
plan review prior to the end date of the current plan, a three month plan extension
can be provided to allow time for a planning meeting to occur...If a participant
is waiting for a plan review and their plan has expired, the NDIA will cover
that expense for the provision of supports that are in line with what a person
was previously receiving in their plan. The NDIA can also extend the old plans
to the day before the start of the next plan to enable providers to receive
payment under the previous plan for services they may have provided during the
gap period.[74]
3.70
The Agency's plan review process is currently under consideration.
Mr Tidswell advised that while the Agency wishes to provide participants the
option to review plans and address any concerns, the process must be balanced
against potentially constant changes and readjustments.[75]
Ms Gunn reflected that the frequency of amendments to plans during the trial
period had informed the Agency's updated approach:
We ended up with individuals, within a year, having 12, 13 or
14 amendments to their plan just as they played with it and thought about it.
That's why we went away from this line-by-line process and lumped the funding
into core, capacity and capital. It's designed to give people a lot more
flexibility in the way they use their funds. What we have discovered in the
kind of volume of people that we've brought in is that people don't understand
how they can use the funds in their plan. So being able to have that
conversation—that one would be relatively easily fixed, to say: 'You actually
can use your funds in these ways. Here are your other options.' But it would be
making ourselves available for that person to ring up, find us easily and chew
it over. Our LACs, local area coordinators, on the ground have to be a source
of that guidance and information for a person.[76]
3.71
Mr Tidswell advised that the Agency was having difficulty contacting
people for reviews and speculated whether negative media stories about plan
reviews had impacted participants' willingness to make contact.[77]
Communication and transparency
3.72
The NDIA acknowledged that it needed to improve its communication and transparency
during planning. Mr Tidswell informed the committee that the Agency is currently
testing hypotheses for better approaches, and considering ways to simplify
language and process:
We had a workshop last Friday in Penrith where we talked
about this directly with participants. We are talking to our planners and staff
as well to think through how we actually ensure that when that planning
conversation is finished you are pretty clear about what is going to be
available in your plan and why...That's the key thing that we're looking at—to
improve the plain English, simplifying it, not having our jargon that we
understand. Sometimes it's challenging, because it might be in the act, but we
need to think through how we actually provide that...There was an expo a month or
two ago in May in Ipswich, ahead of time just before we rolled Ipswich. It went
really well because people knew what they had to do and the system worked much
better. But we've got a lot of work to do there to demystify what is
effectively a fairly complex Scheme.[78]
Communication issues
3.73
Poor communication and engagement with participants and providers was repeatedly
raised by those involved in the Scheme. Several individuals described their
experience of dealing with the Agency as a 'battle'.[79]
3.74
According to witnesses, the Agency's quality of service has
significantly deteriorated since the national rollout. Previously, people had
been able to call local officers and had the direct phone lines of staff, but
from 1 July 2016, all calls were routed through one central phone line. The
Agency's central email system provided equally unsatisfying results as staff
frequently did not respond to requests.[80]
Issues raised focused on NDIA planners and call centre staff and included:
-
being placed on hold for excessive wait times;
-
not receiving responses to email or phone call requests;
-
not being informed of changes to plans;
-
not being able to speak with the same person each time or someone
familiar with their case;
-
not being able to speak to staff with disability knowledge; and
-
instances of threatening or hostile planners.[81]
3.75
Contributors suggested that the Agency implement better call centre
practices, such as calling people back when it is their place in the queue.[82]
Agency response to communication
issues
3.76
The Agency acknowledged that the participant experience during
transition 'has not resulted in a consistently high standard to which the NDIA
aspires'.[83]
It cited challenges with systems and processes; building consistency; detailed
understanding of the Scheme; and processes in a rapidly growing workforce.[84]
3.77
In relation to the centralised phone line, the NDIA reassured the
committee that it has provided intensive training to its call centre operators
to increase the rate of first contact resolution where possible, and reduced
the wait time to less than 1 minute by July 2017. Furthermore, contact centre
opening hours were extended to 8.00am to 11.00pm. The Agency continues to
explore options to improve, including examination of the contact centre's
staffing, processes, and technology.[85]
Service provider issues
3.78
The period between the trial phase and the rollout has been tumultuous
for service providers involved in the Scheme. Two important issues were consistently
raised with the committee: that the NDIA has developed non-contextual pricing
which has placed significant cost pressures on service providers; and that
working within the NDIS is cumbersome. The committee heard that providers
involved in the Scheme have been inadequately funded for services; unable to
claim for services due to portal or planning issues; and forced to hire
additional staff to deal with the issues and complexities of the Scheme.
Non-contextual pricing
3.79
Several providers[86]
expressed their concern at the inadequacy and unsustainability of the Scheme's
non-contextual pricing. It was argued that the level of pricing set by the NDIA
does not accurately reflect the cost of service delivery and overheads incurred
by providers working within the disability market, and has resulted in
organisations carrying considerable gaps in funding.
3.80
The committee is concerned about reports that providers are not
receiving sufficient funds to cover the cost of providing critical support
services, particularly in the cases of people with complex behaviours. The
committee heard compelling evidence from Ms Cathy Milne, Team Leader, Autism
Behavioural Intervention NSW, Assessments and Behaviour Interventions, during
its hearing in Penrith regarding cases of people with complex behaviours placing
those around them at potential risk of harm:
...I received a call from my senior consultant and another
behaviour therapist, who were in the home. We cannot safely allow our team in
that home without two staff. I got a call from my team at seven o'clock at
night—the session was meant to finish at 5 pm—to say they were still there
because the eight-year-old boy was trying to strangle his mother and they were
trying to keep the three-year-old sister, who has a severe and degenerative
vision problem, safe from the violent incident.
After that incident, when my staff left the house finally
confident that the three-year-old was safe and that the seven-year-old brother,
who was hiding in his room, was safe and that the mother was not going to be
any further physically harmed and that the child had had his PRN medication, I
then spent a further two hours with my staff calling DOCS, because this is a
mandatory reporting issue. We are legally obliged to report risk of significant
harm. So we did this. Even if we were not legally obliged to report risk of
significant harm to children, my senior behaviour clinician is a registered
psychologist and she has professional obligations.[87]
3.81
In addition to unforeseen hours of support provision, Ms Milne described
the related reporting and professional obligations required in such
circumstances, arguing that providers' are accumulating hours of unfunded
support:
My team does a huge number of hours of work for these
families, and we cannot claim it under NDIS because NDIS does not recognise
that behaviour support plans need formatting, that a child may not be able to
buy a standard resource off the shelf but needs someone who has skills,
expertise and knowledge of their situation to customise. I have speech
pathologists that will spend hours researching just the right way to help that
child communicate and then design a tailored resource. If I was to charge for
that, that child would have no therapy budget left. If I was to charge my
intensive family support families for the family support, case coordination and
advocacy that we had been able to provide for them, their child would get no
therapy, no respite, nothing.[88]
3.82
Despite providers submitting that they had improved efficiencies and
implemented internal reforms, they still considered pricing to be insufficient for
surplus and reinvestment in service or innovation.[89]
The sustainability of the sector was repeatedly questioned by providers.[90]
Ms Kirwan, from CatholicCare Canberra and Goulburn, told the committee that the
Agency had reported that '42 per cent of ACT providers reported a loss or broke
even last year under the NDIS'.[91]
Providers argued that the NDIA has placed unreasonable limitations on the types
of hours that can be claimed as part of services:
Interaction has a large team of psychologists. They provide
assessment, behaviour intervention support plans, skills training and
therapeutic support to people who experience challenging and/or other
behaviours, their families and our staff...the pricing is confusing and mainly
limited to face-to-face hours. This limitation means that essential and
required tasks—such as report writing, service formatting of behaviour
intervention support plans, individualised pre-reading and research, coaching
of staff, coaching of families and so on—is not covered. Interaction's
psychologists require 44 claimable hours per fortnight to support their role
within the organisation. That 44 hours requires another hour or two besides
that to actually do the task, which means they do not have enough time per
fortnight to actually do the job that they are supposed to do.[92]
3.83
One provider pointed out that the NDIS pricing structure excludes
training costs in its design and should consider a long-term approach to
investment in professional training to improve clinical practices and outcomes
for people with disability.[93]
Mr Craig Moore, from Interaction Disability Services, warned the committee
that, 'the NDIS pricing structure reduces the ability of organisations to
attract and induct the expected injection of new staff into the sector. In that
regard, skills atrophy has been observed in overseas jurisdictions that have
implemented initiatives similar to the NDIS'.[94]
3.84
According to Mr Moore, 'this has happened because of what we believe is
a failure to engage wholly with service providers on planning and pricing'.[95]
Indeed, the NDIA only conducted its first provider feedback forum in April
2017.[96]
Ms Kirwan raised an important point in relation to sustainability:
I was at a meeting with the ACT and Commonwealth ombudsmen.
There were over 40 providers in the room. Every provider put their hand in the
air to say they were owed money by the NDIA...one of the challenges for us as
providers is: when the money is not being provided, do we continue to provide
the level of care that is required and needed and expected by families, with
the risk that, if the money is not provided, we are then out of pocket? We have
been told by the NDIA that the risk sits with us as providers. They do not take
responsibility.[97]
3.85
Providers endorsed the recommendations in a paper prepared by the
National Disability Service titled 'How to get the NDIS on track', which was
released on 4 May 2017. The report makes 24 recommendations, including for
disability service organisations to be involved in the planning process.[98]
Portal and IT issues
3.86
Concerns were also raised with the MyPlace portal and NDIS IT
systems. Participants reported difficulties operating the portal and drew
attention to the website's lack of accessibility, while providers found that it
does not meet all of their business needs.[99]
3.87
The committee heard that the unnecessary complexities of working within
the NDIS had increased administrative workloads.[100]
Some providers hired additional staff to handle the administrative burden of
the Scheme, while stress from the arrangements had caused at least one to
consider deregistering.[101]
Ms Pollard from DUO Services noted, 'it has cost us in the vicinity of another
$200-odd thousand for this current financial year, which is roughly equivalent
to four additional staff to ensure that we can action the cleaning'.[102]
Ms Pollard explained how portal and IT inefficiencies could potentially
threaten the viability of some organisations:
[The portal] prevents claims from being made until a new
service agreement is in place with the participant and the subsequent service
bookings aligning with the new plan have been implemented...we are continuing to
provide services in good faith, and families are continuing to have services,
only to find out that a new plan has been issued unbeknownst to any of us. We
do not have a service agreement in place, so we cannot set up the service
booking to make the claim. In fact, we cannot claim because the item numbers
have changed—and so there is a loss of income. NDIA's messaging is very clear
now that it is 'our business decision'. So I think there is a great deal of
concern around that...[103]
Unclear quote process
3.88
Submitters also expressed concerns regarding the Agency's lack of
guidance on correct procedures for providers to follow. For example, according
to providers, information on how to submit quotes was not available online or communicated
by the Agency to providers at information sessions. Absence of clear
information has caused delays to billing cycles, sometimes up to four weeks.
Submitters suggested that the Agency agree on a single process, and ensure
training and guidance on the process for quotes is made available on its
website.[104]
Agency response to service provider
issues
3.89
In response to concerns regarding non-contextual pricing, the NDIA
highlighted the difficulty of running a national Scheme, and variability across
jurisdictions.[105]
The Agency's price guide is currently an east and west price guide with loading
for remote and very remote. Currently, the Agency sets prices only in areas
where the market is not developed enough and participants could be at risk of
being taken advantage of.[106]
However, Agency officials expected that eventually, pricing would not have to
be set at all because a competitive market would be in place. Mr Tidswell noted
that the hourly rate is actually higher in some jurisdictions than it was
previously, and that this is a tension point in creating a uniform and standard
approach.[107]
The Agency reassured the committee that it was aware of some issues with
providers claiming against supports but usually resolved them.[108]
3.90
With regards to portal and IT issues, the Agency conceded that there
have been cases where providers have temporarily picked up the cost of services
for participants. It provided three scenarios where this could occur and the
options available to providers:
- Where a plan expires without
a new plan in place and providers have continued to provide services to participant
in 'good faith', the NDIA has updated its business system to cover the period
up to the beginning of a new plan.[109]
- Where there are delays in
assessment and acceptance of quotes and providers have continued to provide
daily services to participants in group homes, providers can claim through the
plan after the quote is accepted. If a provider still has difficulty in
claiming, one of the NDIA's regional finance teams can organise payment for
services.[110]
- When there is an omission or
error in the participant's initial plan preventing the payment of a service,
the participant's plan is reviewed and corrected, and the provider can then
claim for services provided.[111]
3.91
As previously discussed, the NDIA is currently conducting an internal
review of its service provider pathways and investigating ways to improve, and
has commissioned an Independent Pricing Review by McKinsey & Company to
report by the end of 2017. According to the NDIA, the participant and provider
pathway transformation plan will include specific projects to enhance
functionality of the MyPlace portals and user experience. To date, the
NDIA has implemented a number of initiatives to assist users to access and use
the MyPlace Portal, including comprehensive user guides, FAQs, improved
staff training, targeted communication and email, and 1800 contact centre
support line channels.
Transport market design
3.92
During its public hearing in Canberra on 12 May 2017, the committee
heard concerns from representatives of the Australian bus industry in relation
to a market-based trial for school transport options for disabled children. The
trial is scheduled to be conducted by the Centre for Market Design (CMD) in
2017.[112]
3.93
According to Mr Peter Kavanagh, Government Relations Manager, Bus
Association Victoria, the NDIA is seeking to introduce an online, real-time
market place, where providers would list their transport services and NDIS
participants would choose an option.[113]
3.94
Presently, State and Territory Governments negotiate with and enter into
agreements with bus operators for services, based on the requirements and
numbers of the children and the particular school. The arrangements have
developed over a period of time and function well in Victoria and Tasmania
according to the industry.
Mr Kavanagh pointed out that the bus industry is required to fulfil strict
accreditation requirements and demonstrate compliance to a range of regulatory,
safety and quality standards.[114]
3.95
The committee heard concerns that if the NDIA opened up the market to
other operators it could run the risk of putting mature players out of business
and leave participants with a potentially less-regulated, less-equipped group
of operators:
..if they start to perform these services without showing any
particular skill or competence in the area then that obviously represents an
unlevel playing field for other providers in the space. More importantly than
that, it could lead to a race to the bottom, price-wise, in some geographical markets...And
the quality of service and safety could be impacted, if...those providers did not
have the necessary safety and quality of service assurances that bus services
can provide and have provided for many decades.[115]
3.96
Mr Kavanagh explained that, as bus operators significantly invest in
their operations and equipment in advance in order to meet contract demands,
the sustainability of the sector may be at risk.[116]
The bus industry expressed concerns that there has been no communication from
the NDIA on the transport market design trial, and there was anxiety as to how
the trial would work, how the online platform would operate, how it would be
regulated, and when the trial would occur. Despite requests for information from
industry, the Agency had not provided any response.
Agency response to transport market
design trial
3.97
The Agency acknowledged the complexity of issues around broader
transport market design and the risk of potentially undermining the market, but
reassured the committee that a working group of the Disability Reform Council
was considering the situation.[117]
3.98
The NDIA explained that the CMD was commissioned to design a pilot
concept that would allow eligible participants and their parents to find
appropriate transport to school through the use of emerging online market
matching technology. It emphasised that the pilot may or may not provide a
practicable basis for a NDIS approach.[118]
The market matching mechanism was scheduled for pilot during term two of the
Victorian school year in 2017, however the project has been placed on hold
while the Victorian Department of Education and Training explores how quality
and safeguards will be managed. The online platform would be monitored by a
Project Steering Committee, including representatives from the Victorian
Department of Education and Training, Commonwealth Treasury, CMD and the NDIA.[119]
3.99
In terms of regulation, the NDIA advised that the Project Steering
Committee—subject to the key issue of the pilot's quality and safeguard
provisions being clarified—will endorse the pilot to proceed. The Victorian
Department of Education and Training is required to provide assurance of the
provision of suitable quality and safeguards during the pilot in accordance
with the agreed roles and responsibilities of states and territories to
continue this function during transition.[120]
The Agency highlighted that the Quality and Safeguards Commission would be
available from July 2018 for both NSW and South Australia, with other
jurisdictions to transition in the following year.[121]
3.100
In parallel with this pilot, the NDIA is working with states and
territories to plan for the transition of specialist school transport to the
NDIS by the end of the transition period. This work is occurring through the
Transport Working Group, a sub-group of the Senior Officials Working Group of
the Council of Australian Governments.[122]
NDIA officials noted that the aim for the wider transport market picture would
be to maintain arrangements and access for people, but were unable to provide
the bus industry any comfort:
At the moment, as you know, states and territories provide
all of these services, and many of them are through bus contracts—we have bus
fleets. These are big endeavours and they are often linked to state government
transport systems, as well is education systems and so on. When you think about
converting that, as you've rightly pointed out, into an individual package,
it's very tricky, because a provider has to have some guarantee of economy of
scale to be able to make a future investment in a fleet. Yet there is no way
any real guarantee can be given, because they have to know that they're going
to get that volume...We're trying to work through this, but the aim, though, is
that all states and territories and us are trying to get to a point where
people get the support they need and they get it when they need it—kids can get
to school appropriately, in a safe way, and we do that in the most affordable,
efficient and effective way. How that plays out at the end of the day, we don't
know.[123]
Committee view
3.101
The NDIA is under considerable pressure to meet bilateral estimates and
ensure the Scheme remains within budget. Nevertheless, the fact that is still
running almost 20 per cent behind estimates for participants is deeply concerning,
particularly in the Early Childhood Early Intervention cohort.
3.102
As the Scheme ramps up and substantially increases in complexity and
size, the committee is concerned that quality and individualisation of plans
may be compromised. In conjunction with a reduction in satisfaction ratings, the
litany of issues raised by participants, providers, families, and carers with
respect to how the planning process is being experienced by those the Scheme is
supposed to help, is evidence of a downwards trend. The committee accepts that
some of these are process and administration issues which will be worked
through and remedied in time. However, evidence received during the committee's
recent public hearings seems to be indicative of a culture developing in the NDIA
that is not placing the participant, and those who support them, at the centre
of the Scheme.
3.103
People with disability should not be facing delays in accessing services
under the NDIS, yet the time taken between when an Access Request is granted
and a planning meeting is scheduled can be several months long. The committee
finds this unacceptable and considers that the delays in access to services are
attributed to early issues faced by the NDIA at commencement of the rollout
which affected the Agency's ability to meet its bilateral estimates.
3.104
The overall communication ethos underpinning the planning process
appears to exclude participants and those who support them at crucial stages.
The option for a participant to view, and comment on their plan before it is
finalised is, in the committee's view, a procedure that could alleviate
concerns and stress. It could also serve to avoid potentially resource
intensive reviews for relatively minor adjustments, allowing the NDIA to focus
their efforts elsewhere.
Recommendation 1
3.105
The committee recommends that the National Disability Insurance
Agency provide an opportunity for participants, and those who support them, to
view, comment, and rectify any errors in their plan in advance of it being
finalised and implemented.
3.106
The committee acknowledges that the Agency is currently investigating
the ways in which it can improve its participant and provider experience. In
light of communication issues raised and the Agency's pledge to improve its
performance, the committee expects that the pathways review currently being
undertaken will be published and made accessible to all those involved in the
Scheme. Areas identified as requiring improvement should be incorporated into
the Agency's Quarterly Reports and progress against targets tracked over time.
Recommendation 2
3.107 The committee recommends that the National Disability Insurance
Agency publish the results of its participants and providers pathways review,
specifically the areas identified for improvement, and the strategies in place
to achieve improved outcomes.
Recommendation 3
3.108
The committee recommends that the National Disability Insurance
Agency include progress on issues identified in the participant and provider
pathways review in future Quarterly Reports.
3.109
With regard to the issue of transport, particularly in relation to the
provision of transport to and from school, the committee suggests that the NDIA
strongly engage with transport providers, participants, parents and the
disability sector on transport market issues to prevent the potential danger
that participants of the Scheme will be left with reduced transport options.
3.110
As discussed in previous committee progress reports, it is very
difficult for the committee, and any other stakeholders, to properly assess the
effectiveness and progress of the Scheme if the same measures of performance
are not carried through each Quarterly and Annual report.
3.111
Furthermore, the committee is concerned that changes in terminology
cover substantial policy shifts such as the apparent decision not to continue
with the 'First Plan' approach. There has been no official announcement that
the NDIA have changed their policy, and the change is only evidenced by the
change in terminology in the most recent Quarterly Report from 'First Plan' to
'Initial Plan'. If this is indicative of a policy change, all stakeholders
deserve to be made aware of it, rather than a simple change of wording from one
Quarterly Report to the next.
3.112
A further example of terminology being altered, thereby increasing
confusion in the sector, is the introduction of the term 'ordinary life'
alongside the criteria of 'reasonable and necessary' to assess the provision of
supports. While the committee acknowledges that there is documentation
available to stakeholders that explains the term, it does not have the same
legislative basis as the term 'reasonable and necessary'. The committee is therefore
frustrated that the use of the term 'ordinary life' in decision-making has
introduced unnecessary confusion for stakeholders.
Recommendation 4
3.113
The committee recommends that the National Disability Insurance
Agency review its quarterly reporting terminology and metrics to ensure
consistency, and apply this to all future reports.
Recommendation 5
3.114
The committee recommends that the NDIA ensure that only criteria
underpinned by terminology set out in the NDIS Act and associated Rules is used
in the assessment of appropriate supports.
3.115
The committee withholds further detailed recommendations in relation to
planning until the results of the pathways review are available.
Hon Kevin Andrews MP
Chair
Senator Alex Gallacher
Deputy Chair
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