| House of Representatives Standing Committee on Family, Community, Housing and Youth

Footnotes

Chapter 1 Conduct and Context of the Inquiry

[1]       In this report the term Australian Government is used whenever possible in preference to Commonwealth Government or Federal Government.

[2]       See for example: From March 2008, access to Utilities Allowance, a payment to assist with regular household bills, was extended to recipients of the Carer Payment.

[3]       See for example: The 2008-09 inquiry into Australia Future Tax System (the Henry Review), which encompasses the Pension Review (the Harmer Review).

[4]       See for example: Name withheld, Submission No 19, p 2; Ms J Bissett, Submission No 54, p 2; Ms A Hewat, Submission No 866, p 4; Ms L Thomas, Transcript of Evidence, 12 August 2008, p 48; Ms B Epstein-Fisch, Transcript of Evidence, 12 August 2008, p 88.

[5]      Australian Government, The Treasury website, viewed 20 March 2009 at www.treasury.gov.au/contentitem.asp?NavId=037&ContentID=1376.

[6]       Australian Government, The Treasury website, viewed 20 March 2009 at www.taxreview.treasury.gov.au/content/Content.aspx?doc=html/timeline.htm.

[7]       Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs website, viewed 20 March 2009 at www.fahcsia.gov.au/internet/facsinternet.nsf/seniors/pension_review.htm.

[8]       Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs website, viewed 20 March 2009 at www.fahcsia.gov.au/internet/facsinternet.nsf/seniors/pension_review.htm#3.

[9]       Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs website, viewed 20 March 2009 at www.facs.gov.au/internet/facsinternet.nsf/seniors/pension_review.htm.

[10]     The Hon Wayne Swan MP & The Hon Lindsay Tanner MP, Budget: Australia’s Federal Relations Budget Paper No. 3 2008-09, pp 11-27.

[11]     Council of Australian Governments website, COAG Communiqué 2 October 2008, p 3, viewed 8 December 2008 at www.coag.gov.au/coag_meeting_outcomes/2008-10-02/index.cfm#aged.

[12]     Council of Australian Governments website, COAG Communiqué 2 October 2008, p 3, viewed 8 December 2008 at www.coag.gov.au/coag_meeting_outcomes/2008-10-02/index.cfm#aged.

[13]     Council of Australian Governments website, COAG Communiqué 2 October 2008, pp 3-4, viewed 8 December 2008 at www.coag.gov.au/coag_meeting_outcomes/2008-10-02/index.cfm#aged.

[14]     Council of Australian Governments, National Disability Agreement, pp 3-9.

[15]     Council of Australian Governments website, viewed 29 January 2009 at www.coag.gov.au/coag_meeting_outcomes/2008-11-29/docs/20081129_national_disability_agreement_factsheet.pdf.

[16]     Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs website, viewed 29 January 2009 at www.fahcsia.gov.au/disability/nds_discussion_paper/nds_paper.rtf.

[17]     Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs website, viewed 29 January 2009 at www.fahcsia.gov.au/internet/facsinternet.nsf/disabilities/nds.htm.

[18]     Australian Government, Department of Education, Employment and Workplace Relations website, viewed 30 January 2009 at www.workplace.gov.au/NR/rdonlyres/37D9990A-A765-4580-BF02-5850A37AA77E/0/StrategypaperFinalRTF.rtf.

[19]     Australian Government, Department of Education, Employment and Workplace Relations website, viewed 20 March 2009 at www.workplace.gov.au/workplace/Publications/PolicyReviews/EmploymentStrategy/.

[20]     Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs website, viewed 20 March 2009 at www.facs.gov.au/internet/facsinternet.nsf/disabilities/policy-dig.htm.

[21]     The House of Representatives Standing Committee on Family and Human Services was the predecessor in the 41st Parliament to the current Parliament’s House of Representatives Standing Committee on Family, Community, Housing and Youth.

[22]     The Parliament of Australia website, Department of the House of Representatives, Balancing work and family, viewed 20 March 2009 at http://www.aph.gov.au/Parliamentary_Business/Committees/House_of_Representatives_Committees?url=fhs/./workandfamily/report.htm.

[23]     The Parliament of Australia website, Department of the Senate, Inquiry into the funding and operation of the Commonwealth State/Territory Disability Agreement, viewed 20 March 2009 at http://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/Completed_inquiries/2004-07/cstda/tor.

[24]     The Parliament of Australia website, Department of the Senate, Inquiry into the funding and operation of the Commonwealth State/Territory Disability Agreement, viewed 20 March 2009 at http://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/Completed_inquiries/2004-07/cstda/report/index.

[25]     The Parliament of Australia website, Department of the House of Representatives, Older people and the law, viewed 20 March 2009 at, http://www.aph.gov.au/Parliamentary_Business/Committees/House_of_Representatives_Committees?url=laca/olderpeople/report.htm.  

[26]     The Parliament of Australia website, Department of the Senate, Building trust: Supporting families through Disability Trusts, viewed 20 March 2009 at http://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/Completed_inquiries/2008-10/disability_trusts/report/index.

[27]     The Parliament of Australia website, Department of the House of Representatives, viewed 15 December 2008at http://www.aph.gov.au/Parliamentary_Business/Committees/House_of_Representatives_Committees?url=laca/disabilitystandards/report.htm.

[28]     The Parliament of Australia website, Department of the House of Representatives, viewed 15 December 2008 at http://www.aph.gov.au/Parliamentary_Business/Committees/House_of_Representatives_Committees?url=laca/disabilitystandards/report.htm.

[29]     The income forgone by carers providing care rather than participating in paid employment.

Chapter 2 Carer Identification, Demographics and Supports and Services

[1]       Carers NSW, Submission No 661, p 6.

[2]       Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0, pp 102-107.

[3]       Carers NSW, Submission No 661, p 6.

[4]       Carers SA, Submission No 684, p 7; See also:  Carers Support Network of South Australia, Submission No 675, p 6; Ms C Murray, Submission No 1134, pp 1-2; Ms M Sweeney, Transcript of Evidence, 6 August 2008, p 89.

[5]       Ms B Llewlyn, Submission No 185, p 4.

[6]       Ms B Llewlyn, Submission No 185, p 4.

[7]       Ms B Llewlyn, Submission No 185, p 5.

[8]       National Carers Coalition, Submission No 571, p 9; Carers Network of South Australia, Submission No 675, p 6; Ms M Walsh, Submission No 752, p 2; Ms C Masolin, Submission No 1190, p 1.

[9]       Ms C Masolin, Submission No 1190, p 1.

[10]     National Carers Coalition, Submission No 571, p 9.

[11]     National Carers Coalition, Submission No 571, p 9.

[12]     The Parliament of Australia website, Department of the House of Representatives, viewed 20 February 2009 at www.aph.gov.au/house/committee/fchy/carers/tor.htm.

[13]     See for example: Carers Victoria, Submission No 652, p 15; Private Mental Health Consumer Care Network, Submission No 696, p 4; Anglicare Canberra and Goulburn, Submission No 724, p 6; ACT Government, Submission No 1000, p 4; Disability Service Commission, Submission No 1039, p 3; Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 10; NSW Government, Submission No 1278, p 4.

[14]     Carers Tasmania, Submission No 671, p 8.

[15]     Mr J Wilkinson, Submission No 1035, p 2.

[16]     See for example: Carers NSW, Submission No 661, p 31; Carers Australia, Submission No 699, p 34; St George Migrant Centre, Submission No 746 (Attached Report), p 17-18; University of Western Sydney, Submission No 758, p 2.

[17]     Queensland Government – Department of Premier and Cabinet, Submission No 1203, p 10.

[18]     National Ethnic Disability Alliance, Submission No 1110, p 9.

[19]     Carers Australia, Submission No 699, p 34.

[20]     Definitions of young carer vary. See for example: the Australian Bureau of Statistics Survey of Disability, Ageing and Carers consider young carers to be carers aged 15-24 years. Carers NSW provides the following definition ‘A young carer is a child or young person 25 years or under who provides support for a family member who has a long term disability, mental illness, other illness, drug or alcohol problem.’

[21]     Ms B Meyer, Transcript of Evidence, 23 July 2008, p 6. See also: Prof B Cass, Transcript of Evidence, 6 August 2008, p 73 & p 79.

[22]     See for example: Ms P Berrutti, Submission No 429, p 2; University of Western Sydney, Submission No 758, p 2; National Network of Adults and Adolescent Children who have Mentally Ill Parents, Submission No 1243, p 1.

[23]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 10.

[24]     ANGLICARE Sydney, Submission No 769, p 32.

[25]     See for example: Queensland Government, Submission No 1203, p 10.

[26]     Ms J Au Yeoug, Transcript of Evidence, 28 July 2008, p 65.

[27]     See for example: ARAFMI (Queensland), Submission No 574, p 3; Mental Health Council of Australia, Submission No 682, p 5; National Network of Adults and Adolescent Children who have Mentally Ill Parents, Submission No 1243, p 1; Ms P Mason, Submission No 808, p 1; Dr J Freiden, Transcript of Evidence, 12 August 2008, p 3.

[28]     Royal Australian and New Zealand College of Psychiatrists, Submission No 672, p 2.

[29]     AICAFMHA-COPMI National Initiative, Submission No 683, p 3.

[30]     See for example: Ms T Haines, Submission No 1128, p 1; Ms R Foldesi, Transcript of Evidence, 26 July 2008, p 47.

[31]     Siblings Australia, Submission No 701, p 3.

[32]     Ms T Haines, Transcript of Evidence, 26 September 2008, p 17.

[33]     Rotary Club of Mount Eliza, Submission No 572, pp 1-4.

[34]     Various witnesses, Transcript of Evidence, 26 September 2008, pp 37-44.

[35]     Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0, p 74.

[36]     Australian Institute of Health and Welfare, Submission No 1033, p 6.

[37]     See for example: Professor B Cass, Transcript of Evidence, 6 August 2008, pp 73-78; Mr K Waters, Transcript of Evidence, 26 September 2008, p 37.

[38]     Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0, p 73.

[39]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 49.

[40]     Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0.

[41]     Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0, p 73.

[42]     Australian Institute of Health and Welfare, Submission No 1033, p 8.

[43]     Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0, p 52.

[44]     Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0, p 51.

[45]     Australian Unity Wellbeing Index (2007), Survey 17.1, The Wellbeing of Australians – Carer Health and Wellbeing, pp vi-vii.

[46]     Australian Institute of Health and Welfare, Submission No 1033, p 5.

[47]     Australian Institute of Health and Welfare, Submission No 1033, p 5.

[48]     Carers NSW, Submission No 661, p 6.

[49]     Carers Victoria, Submission No 652, p 4.

[50]     Carers Australia, Submission No 699, p 8.

[51]     Ms S Matheson, Submission No 587, p 2. See also: Ms B Tickner, Transcript of Evidence, 20 August 2008, p 89.

[52]     See for example: Australian Unity, Submission No 667, p 3; Carers Australia, Submission No 699, p 7; Australian Institute of Health and Welfare, Submission No 1033, p 18; Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, pp 34-36.

[53]     Carers Australia, Submission No 699, p 7.

[54]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 35. See also: Ms B Tkalcevic, Transcript of Evidence, 12 August 2008, p 15.

[55]     Carers Australia, Submission No 699, p 7.

[56]     Carers Australia, Submission No 699, p 7.

[57]     BrainLink Services, Submission No 690, pp 6-7.

[58]     See for example: Ms R Sexton & Mr T Sexton, Submission No 136, p 3; Ms M Anderson, Submission No 331, p 2; Ms C Sebbens & Mr J Doyle, Submission No 615, p 2; Ms M King & Mr R King, Submission No 817, p 3; Mr B Taylor, Submission No 923, p 2.

[59]     See for example: Ms M-L May, Submission No 891, p 3; Carers Victoria, Submission No 652, pp 27-28; Ms G Pierce, Transcript of Evidence, 12 August 2008, pp 38-39.

[60]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 15.

[61]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 15.

[62]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, pp 15-16.

[63]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 19.

[64]     The (child) and (adult) categories in respect of Carer Payment and Carer Allowance relate to differences in the claim/assessment processes involved depending on the age of the care receiver.

[65]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 19.

[66]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 21.

[67]     Recipients of the payment at 10 May 2005 are required to be unable to work 30 hours a week.

[68]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 23.

[69]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, pp 24-33.

[70]     This is a joint Australian Government initiative also involving the Department of Health and Ageing and the Department of Education, Employment and Workplace Relations.

[71]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, pp 24-33.

[72]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, pp 25-26.

[73]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, pp 25-26.

[74]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, pp 27-28.

[75]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, pp 27-28.

[76]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 33.

[77]     Australian Government, Department of Veteran’s Affairs website, viewed 12 February 2009 at www.dva.gov.au/health/vets_families_carers.htm.

[78]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 33.

Chapter 3 A National and Strategic Approach to Carer Recognition and Policy

[1]       See for example: Ms S Menegatos, Submission No 63, p 1; Ms S Hand, Submission No 322, p 1; Ms M Wright, Submission No 330, p 1; Ms J Schroeter, Submission No 838, p 1; Ms J-A Beattie, Submission No 1045, p 1.

[2]       See for example: Ms A Bellchambers, Submission No 349, p 1; Ms T Hayes, Submission No 933, p 2.

[3]       See for example: Ms T Camilleri, Submission No 48.1, p1; Ms K Stanley, Submission No 51, p 1; Ms S Hughes, Submission No 158, p 1; Ms P Bastow, Submission No 161, p 1; Ms J Thorburn, Submission No 170, p 1; Ms L Brown, Submission No 325, p 1; Ms R May, Submission No 351, p 1; Ms J Gutteridge, Submission No 708, p 1; Mr T Stroud, Transcript of Evidence, 12 August 2008, p 50.

[4]       Ms S Hughes, Submission No 158, p 1.

[5]       Ms M Cardamone, Submission No 799, p 1.

[6]       Ms J Roze, Submission No 485, p 2.

[7]       Ms K McDonall, Submission No 518, pp 1-2.

[8]       Ms Careen Dew, Transcript of Evidence, 6 August 2008, p 45.

[9]       Mr F Horgan, Submission No 513, p 1.

[10]     Ms D Croft, Submission No 1219, p 4.

[11]     See for example: Ms M Loyer, Submission No 61, p 1; Mr K Matthias & Ms M Matthias, Submission No 710, p 1; Ms M Ross, Submission No 713, p 1; Ms L Dowd, Submission No 848, p 2; Ms J Steepe, Submission No 1023, p 6.

[12]     See for example: Ms B Kelly, Submission No 12, p 1; Mr N Faint, Submission No 20, p 1; Ms L Baker, Submission No 807, p 9; Mr G Bateson, Submission No 906, p 1; Ms N Jensen, Submission No 1052, p 1; Ms C Gray, Submission No 1133, p 1.

[13]     Ms S Arnoldy, Submission No 774, p 1.

[14]     Access Economics (2005), The Economic Value of Informal Care, p 13.

[15]     Access Economics (2005), The Economic Value of Informal Care, p 15.

[16]     Australian Institute of Health and Welfare, Submission No 1033, p 4.

[17]     ANGLICARE Sydney, Submission No 769, p 15.

[18]     See for example: Palliative Care Australia, Submission No 688, p 1; Name withheld, Submission No 1038, pp 1-2; Ms L P Dryburgh, Submission No 1048, p 1; Ms H Johnson, Transcript of Evidence, 12 August 2008, p 60; Ms W L Cheung, Transcript of Evidence, 12 August 2008, p 41.

[19]     Carers Support Network of South Australia, Submission No 675, p 5.

[20]     National Carers Coalition, Submission No 571, p 10.

[21]     Name withheld, Submission No 1248, p 1. See also: Ms C Alliston, Transcript of Evidence, 13 August 2008, p 50.

[22]     See for example: Ms L Belsham, Submission No 96, p 1; Ms J Cheal, Submission No 116, p 2; Mr I Morris, Submission No 162, p 1; Ms C Agnew, Submission No 166, p 1; National Carers Coalition, Submission No 571, pp 15-17; Ms J Bourke, Submission No 981, p 6; Name withheld, Submission No 1038, pp 1-2; Ms A-M Newbold, Submission No 1042, p 1; Ms D Currow, Submission No 1180, pp 1-3.

[23]     Ms D Edwards, Submission No 159, pp 1-2.

[24]     Ms N Hughes, Submission No 830, p 3.

[25]     See for example: Ms P Bodegraven, Submission No 509, p 2; Ms L Baker, Submission No 807, p 7; Ms D Etherington, Submission No 1204, p 4.

[26]     See for example: Name withheld, Submission No 22.1, p 1; Taskforce on Carer Costs, Submission No 23 (Attachment 1), The Hidden Face of Care: Combining work and caring responsibilities for the aged and people with a disability , p 36; Ms P Bodegraven, Submission No 509, p 2; Carers Support Network of South Australia, Submission No 675, p 5; Carers SA, Submission No 684, p 11; National Seniors Australia, Submission No 686, p 4; Brotherhood of St Laurence, Submission No 694, p 2; Sir Roden Cutler Charities, Submission No 700, p 2; Ms K McCann, Submission No 751, p 7; Name withheld, Submission No 1044, pp 1-2; Ms C Masolin, Submission No 1190, p 1; Ms H Johnson, Transcript of Evidence, 12 August 2008, p 60.

[27]     Carers Support Network of South Australia, Submission No 675, p 5.

[28]     Anglicare Canberra and Goulburn, Submission No 724, p 9.

[29]     Carers Tasmania, Submission No 671, p 8.

[30]     Queensland Government, Department of Premier and Cabinet, Submission No 1203, p 9.

[31]     See for example: National Carers Coalition, Submission No 571, p 14; Carers Australia, Submission No 699, pp 31-32; Ms N Brown, Submission No 951, p 7; Ms M L Carter, Submission No 1291, pp 4-5; Ms A Ashton, Transcript of Evidence, 26 September 2008, p 5.

[32]     These are: The Carers (Recognition and Services) Act, 1995; The Carers and Disabled Children Act 2000; and The Carers (Equal Opportunities) Act, 2004.

[33]     Ms M L Carter, Submission No 1291, pp 4-5. See also: Ms N Brown, Submission No 951, p 7.

[34]     United Kingdom Government, Department of Health website, Carers at the heart of 21^st century families and communities (2008), viewed 25 February 2009 at www.dh.gov.uk/en/publicationsandstatistics/publications/publicationspolicyandguidance/DH_085345.

[35]     United Kingdom Government, Department of Health website, Carers at the heart of 21^st century families and communities: a caring system (2008), p 9, viewed 25 February 2009 at www.dh.gov.uk/en/publicationsandstatistics/publications/publicationspolicyandguidance/DH_085345.

[36]     Carers ACT, Submission No 702, p 13.

[37]     Carers Australia, Submission No 699, p 9.

[38]     Carers Australia, Submission No 699, p 10.

[39]     Table 3.1 lists specific carer recognition legislation introduced by states and territories. The table does not include reference to Acts introduced to increase carer recognition through amendments to existing legislation as introduced in NSW, ACT or Victoria.

[40]     Carers Tasmania, Submission No 671, p 14.

[41]     Ms D McCarthy, Transcript of Evidence, 12 August 2008, pp 94-95.

[42]     See for example: Carers South Australia, Submission No 684, p 10; ACT Government, Submission No 1000, p 2.

[43]     Parliament of New South Wales website, viewed 26 February 2009 at www.parliament.nsw.gov.au/prod/PARLMENT/NSWBills.nsf/0/A62946D1E1E60DFECA2568D3001C3E30?Open&shownotes.

[44]     ACT Government, ACT Legislation Register website, viewed 26 February 2008 at www.legislation.act.gov.au/a/2006-47/default.asp.

[45]     See for example: Ms M Trewhella, Submission No 154, p 5; Ms J Harrison, Submission No 301, p 1; National Carers Coalition, Submission No 571, p 3; Carers NSW, Submission No 661, pp 9-10; Carers South Australia, Submission No 684, p 10; Ms T Hayes, Submission No 933, p 3; Ms E Walker, Submission No 973, p 2; Mr K Wood, Submission No 1007, p 3; Disability Services Commission, Submission No 1039, p 3; Ms J-A Beattie, Submission No 1045, p 3; Ms C Masolin, Submission No 1190, p 3;. Ms M Ryan, Submission No 1155.1, p 22.

[46]     Disability Support Commission, Submission No 1039, p 5.

[47]     Mr P Coates, Transcript of Evidence, 23 July 2008, pp 2-3.

[48]     See for example: Name withheld, Submission No 559, p 4; Ms K McCann, Submission No 751, p 5; Name withheld, Submission No 853, p 3; Families Australia, Submission No 1088, p 18; Ms C McDiarmid, Transcript of Evidence, 20 August 2008, p 48; Mr D Herd, Transcript of Evidence, 6 August 2008, p 63; Ms R Warmington & Mr P Saunders, Transcript of Evidence, 13 August 2008, pp 10–11.

[49]     Ms V Simpson, Submission No 260, p 5.

[50]     Name withheld, Submission No 853, p 3.

[51]     Ethnic Disability Advocacy Centre, Submission No 787, p 9.

[52]     Carers NSW, Submission No 661, p 9.

[53]     Mr D Herd, Transcript of Evidence, 6 August 2008, p 58.

[54]     Ms T Hayes, Submission No 933, p 3.

[55]     Defence Special Needs Support Group, Submission No 695, p 2.

[56]     Ms A Ashton, Transcript of Evidence, 26 September 2008, p 7.

[57]     Ms J Hughes, Transcript of Evidence, 28 November 2008, p 13.

[58]     See for example: Carers SA, Submission No 684, p 28;

[59]     Queensland Government, Department of Premier and Cabinet, Submission No 1203, p 9.

[60]     See for example: Carers Victoria, Submission No 652, p 32; Ms M Wells, Submission No 1034, p 3.

[61]     See for example: National Carers Coalition, Submission No 571, p 40; Carers Victoria, Submission No 652, p 32; Disability Council of NSW, Submission No 662, p 9; Carers Australia, Submission No 699, pp 9-11; Ms M Wells, Submission No 1034, p 3; Ms M L Carter, Submission No 1291, p 11; Ms A Ashton, Transcript of Evidence, 26 September 2008, p 5.

[62]     See for example: Carers NSW, Submission No 661, p 33; Carers SA, Submission No 684, p 28; Ethnic Disability Advocacy Centre, Submission No 787, p 19; Queensland Government, Department of Premier and Cabinet, Submission No 1203, p 10.

[63]     See for example: Carers Australia, Submission No 699, p 12; Ms A Ashton, Transcript of Evidence, 26 September 2008, pp 5-6.

[64]     Carers Australia, Submission No 699, p 12.

[65]     See for example: Australian Association of Families of Children with a Disability, Submission No 581, p 2; Carers ACT, Submission No 702, p 14.

[66]     Ms A Ashton, Transcript of Evidence, 26 September 2008, pp 5-6.

[67]     Carers SA, Submission No 684, p 7.

[68]     Ms H Johnson, Submission No 1178, p 2.

[69]     Ms H Johnson, Submission No 1178, p 3.

[70]     Ms M Walsh, Submission No 752, p 4.

[71]     See for example: Name withheld, Submission No 500, p 26; Carer Support and Respite Centre, Submission No 585, p 3; Carers Support Network of South Australia, Submission No 675, p 4; National Seniors Australia, Submission No 686, p 5; Australian Association of Gerontology, Submission No 915, p 1.

[72]     Palliative Care Australia, Submission No 688, p 8.

[73]     Carers Australia, Submission No 699, p 10.

[74]     Carers Australia, Submission No 699, p 10.

[75]     Australian Government, Department of Prime Minister and Cabinet, Annual Report 2007-08, p 8.

[76]     Australian Government Departments (FaHSCIA, DoHA & DVA), Submission No 1109, p 43.

Chapter 4 Information, Skills and Capacity Building

[1]       Ethnic Disability Advocacy Centre, Submission No 787, pp 5-6.

[2]       Special Kidz Special Needs, Submission No 567, p 12.

[3]       See for example: Huntington's Victoria, Submission No 670.2, pp 5-6; Prof J Wilson, A-Prof C Tilse & Prof L Rosenman, Submission No 698, pp 1-3; Ms M Robbins, Submission No 1139,
p 2.

[4]       Ms D Sullivan, Submission No 126, p 3.

[5]       Carers WA, Submission No 566, p 20.

[6]       YNH Services Inc and Yarrawonga Mulwala Carers Support Group, Submission No 678, p 4. See also: Ms W Smith-Squires, Submission No 263, p 2; Committed About Securing Accommodation for People with Disabilities, Submission No 577, p 5; Ms J Gutteridge, Submission No 708, p 2; Mr R King & Ms M King, Submission No 817, pp 1-2; Name withheld, Submission No 904, p 3; Ms F Tountzis, Submission No 1140, p 2; Ms M Edwards, Submission 1147, pp 4-5; Ms C Atkinson, Submission No 1158, p 1; Ms M Major, Submission No 1163, pp 2-3; Ms A Arnold, Submission No 1166, p 2; Ms J Cooper, Submission No 1194, p 1.

[7]       Mr R Regel, Submission No 335, p 4.

[8]       Mr H Thomas, Transcript of Evidence, 1 October 2008, p 8.

[9]       Name withheld, Submission No 904, p 1.

[10]     Ms M Cochrane, Submission No 824, p 2. See also: Ms M Robbins, Submission No 1139, pp 2-3.

[11]     Ms J Au Yeong, Transcript of Evidence, 23 July 2008, p 65.

[12]     Ms J Burke, Submission No 99, p 1. See also: Ms J Lehmann, Submission No 1258, pp 5-6; Mr R Sinclair, Transcript of Evidence, 13 August 2008, pp 2, 4; Ms R Warminton, Transcript of Evidence, 13 August 2008, p 17; Ms H McDougall, Transcript of Evidence, 1 October 2008, p 9.

[13]     National Network of Adolescent and Adult Children who have a Mentally Ill Parent, Submission No 1243, p 5.

[14]     Mr P Casey, Submission No 3, p 5. See also: Ms J Dajic, Submission No 56, pp 1-2; Name withheld, Submission No 484, p 1; Ms F Tountzis, Submission No 1140, p 2.

[15]     Huntington’s Victoria, Submission No 670.2, p 4. See also: Ms J Nicholas, Submission No 1149, pp 2-3; Mr D Nicholas, Transcript of Evidence, 13 August 2008, p 23.

[16]     Commonwealth Ombudsman, Submission No 511, p 3.

[17]     Commonwealth Ombudsman, Submission No 511, p 2.

[18]     Commonwealth Ombudsman, Submission No 511, p 2.

[19]     Mr R Smeaton, Submission No 69, p 3. See also: Ms W Smith-Squires, Submission No 263, p 2.

[20]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 26. See also: Mr K Tracey-Patte, Transcript of Evidence, 28 November 2008, p 25.

[21]     Carers WA, Submission No 566, p 20.

[22]     The Macarthur Aged & Disability Forum, Submission No 749, pp 3-4. See also: Ms C Morka, Transcript of Evidence, 12 August 2008, p 66.

[23]     Ms J Tams, Submission No 908, p 7.

[24]     For example through the Carer Information and Support Program, the National Carer Counselling Program,  and the Respite and Information Services for Young Carers.

[25]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, pp 26-32.

[26]     Ms J Hughes, Transcript of Evidence, 28 November 2008, p 16.

[27]     See for example: YNH Services & Yarrawonga Mulwala Carer Support Group, Submission No 678, p 4.

[28]     Ms S Pringle, Transcript of Evidence, 1 October 2008, p 39.

[29]     See for example: Mr F De Rosa, Submission No 63, p 2; Mr W de Goede, Submission No 366, p 1; YNH Services Inc and the Yarrawonga Mulwala Carers Support Group, Submission No 678, p 4; Mr G Jarvis, Submission No 767, p 2; Ms M-L May, Submission No 891, p 3; Name withheld, Submission No 904, p 3; Ms V Wood, Submission No 1164, p 1; Mr J Halford, Transcript of Evidence, 12 August 2008, p 43; Ms M Anderson, Transcript of Evidence, 12 August 2008, p 44; Mr R Sinclair, Transcript of Evidence, 13 August 2008, p 8.

[30]     Ms C Atkinson, Submission No 1158, p 1.

[31]     Carers WA, Submission No 566, p 20. See also: Brotherhood of St Lawrence, Submission No 694, p 5; Mr R Haines, Mr P Sparrow and Mr G Vogt, Transcript of Evidence, 13 August 2008, pp 69-74.

[32]     Australian Government, Department of Health and Ageing website, viewed 12 March 2009 at www.health.gov.au/internet/main/publishing.nsf/Content/ageing-twf-access-status.htm. See also: Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.1 pp 4-6; Name withheld, Submission No 1304, p 1.

[33]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.1, pp 4-6.

[34]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.1, pp 4-6.

[35]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 28.

[36]     See for example: Ms J Cheal, Submission No 116, p 2; Mr J Davis, Submission No 368, p 1; Ms S Jalanski, Submission No 446, p 2; Ms A Atkins, Submission No 771, p 1; Mr G Ingram & Ms K Ingram, Submission No 865, p 1; Ms J Rafferty, Submission No 1183, p 1; Mr H Thomas, Transcript of Evidence, 1 October 2008, p 8.

[37]     Cooinda Family Support Group, Submission No 693, p 1.

[38]     Carers Queensland, Submission No 703, p 12.

[39]     Ms H McDougal, Transcript of Evidence, 1 October 2008, p 6. See also: Mr P Sparrow, Transcript of Evidence, 13 August 2008, pp 68-69.

[40]     Ms M Campbell, Transcript of Evidence, 1 October 2008, p 14.

[41]     See for example: Ms G Esson, Submission No 647, p 2; St Helens Support Group, Submission No 798, pp 1-2.

[42]     Mr G Lindsey, Transcript of Evidence, 1 October 2008, p 26.

[43]     Ms C Sanderson, Transcript of Evidence, 1 October 2008, p 32.

[44]     Ms M Parnell, Submission No 849, p 1.

[45]     Ms C Cornish, Submission No 1150, pp 1-2. See also: Ms J Davis, Submission No 1167, p 2.

[46]     ANGLICARE Sydney, Submission No 769, p 19. See also: Ms S Durkin, Submission No 329, p 2; Ms W Smulders, Submission No 855, p 2; Australian Association of Gerontology Inc, Submission No 915, p 2; Mr R Taylor, Submission No 923, pp 1-2.

[47]     The Royal Australian and New Zealand College of Psychiatrists, Submission No 672, p 3.

[48]     The Royal Australian and New Zealand College of Psychiatrists, Submission No 672, p 3.

[49]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.2, p 9.

[50]     Uniting Care Remote Family Services, Submission No 656, p 2.

[51]     Carers SA, Submission No 684, p 24.

[52]     Ms A M MacArthur, Submission No 871, p 1.

[53]     Carers WA, Submission No 566, p 22.

[54]     Carers Australia, Submission No 699, p 45.

[55]     Name withheld, Submission No 853, pp 1-2. See also: Ms A Arnold, Submission No 1166, p 1; Ms E Fudge, Transcript of Evidence, 13 August 2008, p 54.

[56]     Carers WA, Submission No 566, p 22. See also, Mr R Sinclair, Transcript of Evidence, 13 August 2008, p 2.

[57]     Ms J Small, Submission No 110, p 1.

[58]     Ms C Hill, Submission No 1117, p 1.

[59]     Ms J Witts, Submission No 326, p 2.

[60]     Perth Carers Forum Group, Submission No 883, p 4.

[61]     See for example: Ms D Stewart, Transcript of Evidence, 13 August 2008, p 27.

[62]     Alzheimer’s Australia, Submission No 1002, p 16. See also: NSW Government, Submission No 1278, p 13.

[63]     Alzheimer’s Australia, Submission No 1002, p 16.

[64]     Carers SA, Submission No 684, p 25. See also: Ms M Alford, Transcript of Evidence, 13 August 2008, p 4.

[65]     Carers WA, Submission No 566, p 6. See also: Ms J Coulter, Submission No 1151, p 2.

[66]     Carers SA, Submission No 684, p 25.

[67]     Huntington’s Victoria, Submission No 670.2, pp 5-6. See also: Mr R Sinclair, Transcript of Evidence, 13 August 2008, p 3.

[68]     Ms M McIlroy, Submission No 108, p 1.

[69]     Ms M Cardamone, Submission No 799, p 3.

[70]     See for example: Carers WA, Submission No 566, p 22; Carers SA, Submission No 684, p 25.

[71]     These are Community Aged Care Packages (CACP), Extended Aged Care at Home (EACH) Packages and Extended Aged Care at Home Dementia (EACHD) Packages.

[72]     Australian Government Packages offer subsidised packages of care for older, frail people with complex care needs. Home and Community Care (HACC) is a joint program of the Australian, state and territory governments.

[73]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.1, pp 4-5.

[74]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.1, pp 4-5.

[75]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.1, p 5.

[76]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.1, p 5.

[77]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.1, p 5.

[78]     See for example: Ms M Nazzari, Submission No 100, pp 1-2; The Partners of Veterans Association of Australia Inc, Submission No 566, p 5; Ms S Matheson, Submission No 587, p 6; St George Migrant Resource Centre, Submission No 746, p 10; ANGLICARE Sydney, Submission No 769, p 6; Ms L Baker, Submission No 807, p 16; Name withheld, Submission No 860, p 1; Mr R Hart & Ms M Hart, Submission No 1174, p 2; Ms M Anderson, Transcript of Evidence, 12 August 2008, pp 44-45.

[79]     Mr M Hengeveld, Submission No 29, p 1.

[80]     Ms G Walker, Submission No 266, p 1.

[81]     Name withheld, Submission 852, p 1.

[82]     Ms W Smulders, Submission No 855, p 3.

[83]     Mr R McEachern & Ms G McEachern, Submission No 1171, p 4.

[84]     Mr K Hewitt, Submission No 328, p 2. See also: Sunnyfield Independence, Submission No 663, pp 2-4; Perth Carers Forum Group, Submission No 983, p 4.

[85]     Mr A Skimin, Transcript of Evidence, 26 September 2008, p 14.

[86]     ANGLICARE Sydney, Submission No 769, pp 8-9.

[87]     Queensland Government, Department of Premier and Cabinet, Submission No 1203, p 15. See also: Carers NSW, Submission No 661, p 29; ANGLICARE Sydney, Submission No 769, pp 8-9.

[88]     Friends of EACH Action Group, Submission No 1279, p 11. See also: Ms G Hawthorne, Submission No 12, p 2; Ms J Killeen, pp 1-2; Ms M-L May, Submission No 891, p 3; Mr T Stroud, Transcript of Evidence, 12 August 2008, p 49.

[89]     Ms H Johnson, Submission No 1178, p 3.

[90]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.2, p 2. The National Disability Advocacy Program does provide funding for some systemic advocacy on behalf of people with disability.

[91]     See for example: Ms H Johnson, Submission No 1178, p 8; Mr R Gow, Transcript of Evidence, 15 October 2008, p 5.

[92]     See for example: Ms S Harmer, Submission No 430, p 1; Gippsland Carers Association, Submission No 660, p 4; Mr R Gow, Transcript of Evidence, 15 October 2008, p 6.

[93]     See for example: Ms F Galbraith, Submission No 1089, pp 5-6. See also: National Carers Coalition, Submission No 571, pp 4-6; Gippsland Carers Association, Submission No 660, p 4; A4 Autism Aspergers Advocacy Australia, Submission No 1105, pp 2-3.

[94]     See for example: Mr R Gow, Transcript of Evidence, 15 October 2008, pp 4-7. See also: Ms F Anderson, Submission No 979, p 12; Ms A Geach-Bennell, Submission No 1022, p 1; Ms F Galbraith, Submission No 1089, p 5; Ms H Johnson, Submission No 1178, p 8; Ms N Brown, Transcript of Evidence, 6 August 2008, p 48.

[95]     Carers Queensland, Submission No 703, p 12. See also: Carer Support and Respite Centre Carer Group, Submission No 585, p 4; Carers ACT, Submission No 702, pp 26-28.

[96]     Carers ACT, Submission No 702, p 20. See also: Mr J Wilkinson, Submission No 1035, p 6.

[97]     Ms C Polidano, Submission No 259, p 2.

[98]     See for example: Ms V Simpson, Submission No 260, p 5; Carers NSW, Submission No 661, p 14; Australian Association of Gerontology Inc, Submission No 915, p 3; Ms J O’Connor, Submission No 1003, p 3; Ms F Galbraith, Submission No 1089, pp 5-6; National Ethnic Disability Alliance, Submission No 1110, pp 22-23; Mr G Schlecht, Transcript of Evidence, 20 August 2008, p 34.

[99]     Ms J Hughes, Transcript of Evidence, 28 November 2008, p 13.

[100]   Family Advocacy, Submission No 768, p 1.

[101]   Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.2, p 2.

[102]   Council of Australian Governments, National Disability Agreement, p 3.

[103]   Carers Australia website, viewed 11 March 2009 at www.carersaustralia.com.au/?/national/article/view/via:0:157. See also: Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs, viewed 11 March 2009 at www.facs.gov.au/disability/national_disability_advocacy/default.htm.

[104]   See for example: Name withheld, Submission No 244, p 10; Mr J Halford, Transcript of Evidence, 12 August 2008, p 43.

[105]   See for example: National Carers Coalition, Submission No 571 (Attachment 2), pp 1-14; Ms N Brown, Transcript of Evidence, 6 August 2008, p 47.

[106]   Ms E Shields, Submission No 35, p 1.

[107]   Mr R Gow, Transcript of Evidence, 15 October 2008, p 5.

[108]   Ms J Tops, Transcript of Evidence, 15 October 2008, p 10.

[109]   National Carers Coalition, Submission No 571 (Attachment 2), pp 1-14.

[110]   Ms J Hughes, Transcript of Evidence, 28 November 2008, p 13.

[111]   Ms J Hughes, Transcript of Evidence, 28 November 2008, p 13.

[112]   Mr A Stuart, Transcript of Evidence, 28 November 2008, p 38.

[113]   See for example: Mr W de Goede, Submission No 366, p 1; Ms S Matheson, Submission No 587, p 5; Carers NSW, Submission No 661, pp 10-12; Carers Australia, Submission No 699, p 10; Ms H Johnson, Submission No 1178, p 9; Dr M Leggatt, Transcript of Evidence, 12 August 2008, pp 9-10; Mr P Saunders, Transcript of Evidence, 13 August 2008, p 11; Ms J McMahon, Transcript of Evidence, 13 August 2008, pp 91-92; Ms A Ashton, Transcript of Evidence, 26 September 2008, p 5.

[114]   See for example: Name withheld, Submission No 503, p 1; Ms J Nicholas, Submission No 1149, 3-4; Ms L Harper, Submission No 1162, p 4.

[115]   Ms M Cardamone, Submission No 799, p 1.

[116]   Ms A Burgess, Submission No 127, p 2. See also: Ms C Alliston and Ms C Fudge, Transcript of Evidence, 13 August 2008, pp 56-57.

[117]   Carers Victoria, Submission No 652, p 32.

[118]   Carers NSW, Submission No 661, p 11.

[119]   See for example: Ms R Warmington, Transcript of Evidence, 13 August 2008, p 13.

[120]   Carers WA, Submission No 566, p 20. See also: Carers NSW Submission No 661, p 9; Carers SA, Submission No 684, p 11.

[121]   Carers SA, Submission No 684, p 11. See also: Ms R Warmington, Transcript of Evidence, 13 August 2008, pp 13-14.

 

[122]   Royal Australian and New Zealand College of Psychiatrists, Submission No 672, p 4. See also: Dr J Freiden & Dr M Leggatt, Transcript of Evidence, 12 August 2008, pp 4-5.

[123]   Mental Health Council of Australia, Submission No 682, pp 9-10. See also: Ms J Hardy, Transcript of Evidence, 13 August 2008, p 93.

[124]   See for example: NSW Guardianship Tribunal, Submission No 659, p 1; Mr T Tregale & Ms H Tregale, Submission No 766.1, pp 1-2.

[125]   Alzheimer’s Australia, Submission No 1002, p 19.

[126]   Alzheimer’s Australia, Submission No 1002, p 19. See also: Ms R Beale, Submission No 741, p 3; Ms M Robbins, Submission No 1139, p 2.

[127]   NSW Guardianship Tribunal, Submission No 659, p 2.

[128]   Mental Health Council of Australia, Submission No 682, pp 9-10.

[129]   Alzheimer’s Australia, Submission No 1002, p 19.

Chapter 5 Financial Assistance

[1]       See for example: Mr N Faint, Submission No 20, pp 1-2; Name withheld, Submission No 22, p 1; Ms M Keep, Submission No 25, p 1; Mr J Thompson, Submission No 26, p 1; Ms A Seales, Submission No 52, p 1; Ms L Horsely, Submission No 123, p 1; Ms P Bastow, Submission No 161.1, p 1; Ms K Tucker, Submission No 321, 2; Ms N Green, Submission No 831, p 2; Ms C Bortolot, Submission No 1124, p 2; Mr C Coleman, Transcript of Evidence, 12 August 2008, p 27.

[2]       See for example: Mr R G Spring, Submission No 49, p 1; Ms M Loyer, Submission No 61, p 1; Ms W L Cheung, Submission No 492, p 1.

[3]       Quintile: When persons are ranked from the lowest to the highest on the basis of some characteristic such as household income, they can then be divided into equal sized groups. When the population is divided into five equally sized groups, the groups are called quintiles.

[4]       Australian Bureau of Statistics (2004), Survey of Disability, Ageing and Carers, 4430.0, p 51.

[5]       Edwards et al (2008), Australian Institute of Family Studies Research Report No 16, The Nature and Impact of Caring for a Family Member with a Disability, pp 25-26. See also: Dr P Hill, Transcript of Evidence, 6 August 2008, p 76.

[6]       Millpark Schizophrenia Support Group, Submission No 573, p 2.

[7]       Access Economics (2005), The Economic Value of Informal Care, p 13.

[8]       Ms F Anderson, Submission No 979, p 8.

[9]       Ms L Humphries, Transcript of Evidence, 6 August 2008, p 43.

[10]     Australian Bureau of Statistics (2008), A Profile of Carers, 4448.0, p 53.

[11]     See for example: Ms P Haldane, Submission No 41, p 1; Name withheld, Submission No 45, p 1; Ms T Camilleri, Submission No 48, p 2; Ms M Bartlett, Submission No 58, p 2; Mr I Morris, Submission No 162, p 2; Ms V Lynch, Submission No 334, p 1; Ms S Minutillo & Mr S Minutillo, Submission No 358, p 1; Mr P Alderton, Transcipt of Evidence, 13 August 2008, p 3.

[12]     Mr F Novak, Submission No 1212, p 1.

[13]     Mr R G Spring, Submission No 49, p 1.

[14]     Ms M Jones, Submission No 375, p 1.

[15]     Ms L MacIver, Submission No 191, p 2.

[16]     Ms J Craven, Submission No 754, pp 1-2.

[17]     See for example: Mr S Miljevic, Submission No 32, p 2; Ms P Haldane, Submission No 41, pp 1-2; Ms T Camilleri, Submission No 48, p 2; Ms J Small, Submission No 110, p 2; Mr N Kennedy, Submission No 183, p 1; Ms V Simpson, Submission No 260, p 5; Mr J Le, Submission No 364, p 1; Mr W de Goede, Submission No 366, p 1; Ms M Jones, Submission No 375, p 2; Ms D Stewart, Submission No 813, p 1; Ms R M Painter, Submission No 1143, p 2; Mrs M Bishop & Mr J Bishop, Submission No 1188, p 1.

[18]     See for example: Mr R Wells, Submission No 15, p 2; Ms K Stanley, Submission No 51, p 1; Ms D Edwards, Submission No 159, pp 1-2; Ms S Wilson, Submission No 371, p 1; Ms A Hewat, Submission No 866, p 6; Mr G Dwyer, Submission No 1093, p 1; Ms C Murray, Submission No 1134, pp 1-2.

[19]     See for example: Ms H James, Submission No 614, p 1; Carers NSW, Submission No 661, p 16; Ms N Hughes, Submission No 830, pp 4-5; Ms C Polak, Submission No 902, p 3; Ms V Evans, Submission No 1201, p 1.

[20]     See for example: National Carers Coalitions, Submission No 571, pp 23-25; Ms L Baker, Submission No 807, p 5; Ms C Murray, Submission No 1134, p 2; Ms M L Carter, Submission No 1291, p 6.

[21]     Ms D Greenfield, Submission No 111, p 2.

[22]     Ms D London, Submission No 117, p 1.

[23]     Ms T Hales, Submission No 933, p 3.

[24]     Name withheld, Submission No 358, p 1.

[25]     Ms M Waller, Submission No 53, p 2.

[26]     Ms J Hughes, Transcript of Evidence, 28 November 2008, p 11. See also: Carers ACT, Submission No 702, p 7.

[27]     See for example: Ms M Menegatos, Submission No 63, p 2; Ms V Simpson, Submission No 260, p 5; Ms L Krupjak, Submission No 365, p 1; National Carers Coalition, Submission No 571, p 5; Bathurst Carers District Voice, Submission No 1091.1, p 4.

[28]     Ms L MacIver, Submission No 191, pp 1-2.

[29]     Mr T Hunter, Submission No 7, p 1.

[30]     Ms C Polidano, Submission No 259, p 4.

[31]     Ms C Polidano, Submission No 259, p 7.

[32]     Mr F Horgan, Submission No 513, pp 1-2.

[33]     Mr J Halford, Submission No 250, p 5.

[34]     Mr P Laughton, Submission No 770, p 1.

[35]     Ms R Kyne, Submission No 873, p 4.

[36]     National Carers Coalition, Submission No 571, p 23.

[37]     The payment of $1,000 was made to carers receiving Carer Payment, Department of Veterans’ Affairs (DVA) Carer Service Pension, Wife Pension and Carer Allowance, and the DVA Partner Service Pension and Carer Allowance.

[38]     See for example: Ms P Jerrick, Submission No 6, p 1; Name withheld, Submission No 47, pp 2-3; Ms M Menegatos, Submission No 63, p 3; Ms N Kennedy, Submission No 183, p 1; Ms V Simpson, Submission No 260, p 6; Ms N Magnusson, Submission No 269, p 2; Ms S Hand, Submission No 322, p 5.

[39]     Ms S Miles, Submission No 452, p 2.

[40]     See for example: Ms G Hawthorne, Submission No 129, p 1; Ms S Shanawaz, Submission No 626, p 2.

[41]     See for example: Ms D Purcell, Submission No 2, p 1; Mr J Radford, Submission No 4, p 1; Mr C Dyer, Submission No 27, p 1.

[42]     Ms M Weller, Submission No 53, p 2.

[43]     Ms G Wilson-Burns, Submission No 1080, p 18.

[44]     Ms J Hughes, Transcript of Evidence, 28 November 2008, p 11.

[45]     See Australian Government (2007), Report of the Carer Payment (child) Review Taskforce, Recommendations 19-24, pp 16-17.

[46]     See for example: Mr R Duley, Submission No 1, p 1; Ms B Kelly, Submission No 12, p 1; Mr G Ozols, Submission No 18, pp 1-2; Ms J Dajic, Submission No 56, p 3; Ms L MacIver, Submission No 191.1, p 4; Ms A Mitchell, Submission No 264, p 1; Name withheld, Submission No 353, p 1; Commonwealth Ombudsman, Submission No 511, p 3; Ms D Springett, Submission No 545, pp 1-2; Hunters Hill Ryde Community Services, Submission No 583, pp 1-2; Carer Support and Respite Centre Carer Group, Submission No 585, p 3; Ms A Hewat, Submission No 866, p 8; Ms A Robinson, Submission No 870, pp 4-5; Mr D Gill, Submission No 1136, p 2.

[47]     Carer Support Network of South Australia, Submission No 675, p 5.

[48]     Name withheld, Submission No 19, p 2.

[49]     Ms L Walker, Submission No 470, p 2.

[50]     Ms B Packham, Submission No 1087, p 4.

[51]     Mr R Regal, Submission No 335, p 4.

[52]     Ms D Springett, Submission No 545, p 1.

[53]     Name withheld, Submission No 367, p 3.

[54]     See for example: Carers ACT, Submission No 702, p 17; Ms B Miller, Submission No 903, p 1; Mr K Gerachty & Ms K McCann, Submission No 884, p 2.

[55]     Ms M Trewhella, Submission No 154, p 5.

[56]     National Ethnic Disability Alliance, Submission No 1110, p 18.

[57]     Name withheld, Submission No 358, p 2. See also: Name withheld, Submission No 358, p 2; Ms G Parker, Transcript of Evidence, 12 August 2008, p 31.

[58]     Ms M Parnell, Submission No 849, p 14.

[59]     Ms L Symons, Submission No 1043, p 2.

[60]     Carer Support Network of South Australia, Submission No 675, p 4. See also: Mr M Aldred, Transcript of Evidence, 12 August 2008, pp 57-58.

[61]     See for example: Ms D McIntyre, Submission No 187, p 1; ARAFMI WA, Submission No 578, p 2; Ms P Mason, Submission No 808, p 2; Horsham Family Advisory Committee, Submission No 1108, p 4; Ms G Parker, Transcript of Evidence, 12 August 2008, p 31; Ms S Matheson, Transcript of Evidence, 12 August 2008, p 52.

[62]     Mental Illness Fellowship Victoria, Submission No 1104, p 10.

[63]     Ms H Charlesworth, Submission No 444, p 2.

[64]     Mr J Wallent, Submission No 834, p 2.

[65]     See Australian Government (2007), Report of the Carer Payment (child) Review Taskforce, Recommendations 19-24, pp 16-17.

[66]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 45. See also: Social Security Amendment Bill 2009 introduced into Parliament on 19 May 2009.

[67]     See for example: Mr R Smeaton, Submission No 69, pp 2-3; Mr N Sweeney, Submission No 133, p 1; Ms J Guilfiole, Submission No 160, p 2; Mr K Sheedy, Submission No 276, p 2; Mr K McDonall, Submission No 518, p 2; Ms L Watkins, Submission No 551, p 1; Mr M MacDonald & Ms J MacDonald, Submission No 589, pp 2-3; Ms G Vines, Submission No 833, p 2; Ms C Paisley-Dew, Submission No 845, p 2; Ms C MacDonald, Submission No 947, p 1; Ms S Scrivener & Mr D Scrivener, Submission No 1113, p 3; Mr L Hudson & Ms A Hudson, Submission No 1141, p 1; Ms C McEachern & Mr R McEachern, Submission No 1171, p 2; Mr R Shaw, Submission No 1172, p 1; Ms L Aspinall, Submission No 1189, p 1; Ms T Shanahan, Submission No 1195, p 2; Ms K Duff, Submission No 1197, p 1; Ms T McLure, Submission No 1200, p 3; Ms K Clark, Transcript of Evidence, 6 August 2008, p 49; Ms H Johnson, Transcript of Evidence, 12 August 2008, p 47; Ms S Hodgson, Transcript of Evidence, 9 October 2008, p 38.

[68]     Ms F Anderson, Submission No 979, p 14.

[69]     See for example: Ms V Butler, Submission No 268, pp 1-3.

[70]     Mr M Aldred, Transcript of Evidence, 12 August 2008, p 51.

[71]     Ms M King & Mr R King, Submission No 817, p 2.

[72]     Mr R Smeaton, Submission No 69, p 3.

[73]     Ms M Hart & Mr R Hart, Submission No 1174, p 1.

[74]     Equivalised household income is adjusted to account for differences in household size and composition (eg number of adults and number of children in a household).

[75]     Dr P Saunders (2006), The Costs of Disability and the Incidence of Poverty, Social Policy Research Centre, Discussion Paper No 147, p 22.

[76]     Dr P Saunders (2006), The Costs of Disability and the Incidence of Poverty, Social Policy Research Centre, Discussion Paper No 147, p 22.

[77]     Carers Queensland, Submission No 703, p 14.

[78]     See for example: Taskforce on Care Costs (2005), Creating Choice: Employment and the cost of caring; Taskforce on Care Costs (2007) Creating Choice: Employment and the cost of caring; Access Economics (2005), The Economic Value of Informal Care.

[79]     Ms L Watkins, Submission No 551, p 1.

[80]     A quarterly payment to assist with regular household bills.

[81]     A quarterly payment to assist with maintaining the cost of a telephone service and internet connection.

[82]     Australian Government, Department of Health and Ageing website, viewed 25 February 2009 at www.health.gov.au/internet/main/publishing.nsf/content/continence-caas.htm.

[83]     See for example: Mr M MacDonald & Ms J MacDonald, Submission No 589, pp 2-3; Ms K McCann, Submission No 751, p 4; Ms S Walden, Submission No 900, pp 3, 4; Ms G Hunter, Submission No 1090, p 1; Mr C Coleman, Transcript of Evidence, 12 August 2008, p 28.

[84]     For example: The Victorian Aids and Equipment Program (VAEP), the Community Aids Equipment Program (CAEP) in WA or the Patient Assisted Transport Scheme (PATS) in NSW.

[85]     MS Australia, Submission No 692, p 22.

[86]     See for example: Australian Association for Families of Children with a Disability, Submission No 581, p 4; Young People in Nursing Homes National Alliance, Submission No 764, p 13; Ms F Anderson, Submission No 979, p 5.

[87]     Australian Government, Treasury website, viewed 25 February 2009 at taxreview.treasury.gov.au/Content/Content.aspx?doc=html/home.htm.

[88]     Australian Government, Centrelink website, viewed 2 March 2009 at www.centrelink.gov.au/internet/internet.nsf/payments/conc_cards_pcc.htm.

[89]     See for example: Parkside Foundation, Submission No 673, p 10; Ms M Cardamone, Submission No 799, p 5; Ms M Parnell, Submission No 849, p 7; Ms K Ingram & Mr G Ingram, Submission No 865, p 3; Ms L Coyte, Submission No 868, p 4; Ms C Rowntree, Submission No 1299, p 1.

[90]     Issues pertaining to the health and wellbeing of carers are considered in more detail in chapter 8 of the report.

[91]     See for example: Ms B Kelly, Submission No 12, p 1; Name withheld, Submission No 559, p 4; Carers WA, Submission No 566, p 6; Carers Support and Respite Centre Carers Group, Submission No 585, p 7; Carers NSW, Submission No 661, pp 17-18; Carers Support Network of South Australia, Submission No 675, pp 4, 10; Ms P Mason, Submission No 808, pp 2-3; Ms M L Carter, Submission No 1291, pp 5-6; Mr C Coleman, Transcript of Evidence, 12 August 2008, p 70; Ms D Stewart, Transcript of Evidence, 13 August 2008, p 27; Ms J Hughes, Transcript of Evidence, 28 November 2008, p 11.

[92]     See for example: Carers Australia, Submission No 699, p 31; MS Australia, Submission No 692, p 23; Name withheld, Submission No 883, p 5; Ms A-M Newbold, Submission No 1942, p 3; Ms H Johnson, Submission No 1178, p 8; Developmental Disability Council of WA, Submission No 786, p 4; Association for Children with a Disability, Submission No 750, p 4; Disability Services Commission, Submission No 1039, p 9; Ms K Clark, Transcript of Evidence, 6 August 2008, p 49; Mr B Bonyhady, Transcript of Evidence, 5 March 2009, pp 1-11.

[93]     Ms L Kelly, Submission No 1173, pp 1-2.

[94]     Ms L Kelly, Submission No 1173, p 4.

[95]     MS Australia, Submission No 692, p 23.

[96]     In Australia no fault insurance already exists for employees injured at work through workers compensation schemes (e.g. NSW WorkCover) and for people injured in a traffic accident (e.g. Victorian Transport Accident Commission’s no fault insurance scheme). Internationally, since 1974 New Zealand has had a nationalised, no fault disability service insurance scheme, which provides on going support services for people acquiring permanent personal injury.

[97]     See for example: Mr N Kennedy, Submission No 183, p 1; Ms M Major, Submission No 1163, p 1; Mr S Dodd & Ms H Dodd, Submission No 1196, p 1; Ms J Rollo, Submission No 1246, p 1; Mr M Forty, Transcript of Evidence, 12 August 2008, p 42; Mr T Stroud, Transcript of Evidence, 12 August 2008, p 50; Ms K Logan, Transcript of Evidence, 9 October 2008, p 20.

[98]     See for example: Ms L McIver, Submission No 191, pp 1-2; Ms G Vines, Submission No 833, p 2; Ms J O’Connor, Submission No 1003, p 2; Ms J English, Transcript of Evidence, 12 August 2008, p 62; Ms K Pritchard, Transcript of Evidence, 28 November 2008, p 5.

[99]     MS Australia, Submission No 692, p 3.

[100]   NATASEM (2008), Commonwealth Financial Planning: Women Carers in Financial Stress, pp 21, 26-27.

[101]   See for example: Mr W de Goede, Submission No 366, p1; Ms D Hayes, Submission No 952, p 21; Mr D Galbraith, Submission No 967, p 1; Ms A Pfaller, Submission No 976, p 2; Perth Carer Forum Group, Submission No 983, p 4; Mr R Shaw, Submission No 1172, p 1; Ms H Johnson, Submission No 1178, p 8; Ms V Evan, Submission No 1201, p 1; Ms G Pierce, Transcript of Evidence, 12 August 2008; pp 36-37.

[102]   See for example: Mr J Halford, Submission No 250, p 6; Special Kidz Special Needs, Submission No 567, p 17; Ms C Phillips, Submission No 755, p 2; Disability Services Commission, Submission No 1039, p 6; Ms J Cooper, Submission No 1194, p 3; Ms W L Cheung, Transcript of Evidence, 12 August 2008, p 41.

[103]   See for example: Association for Children with a Disability, Submission No 750, pp 4-5; Sutherland Shire Disability Accommodation Action Group, Submission No 846, p 4; Australian Association of Gerontology, Submission No 915, p 2; Ms J Hughes, Transcript of Evidence, 28 November 2008, p 11.

[104]   Australian Government, The Treasury, Australia’s Future Tax System – Retirement Income Consultation Paper, (2008).

[105]   See for example: Ms K McDonnal, Submission No 518, pp 2, 4; Ms I Stockfeld, Submission No 554, pp 1, 4; Ms Y Graham, Submission No 716, p 2; Ms S Goodman, Submission No 879, p 2; Ms J Rodighiero, Submission No 934, p 1; Ms M Wells, Submission No 1034, p 8; Ms G Hunter, Submission No 1090, p 1; Name withheld, Submission No 1175, p 2; Ms N Cummings, Submission No 1181, p 3.

[106]   Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs website, viewed 2 March 2009 at www.fahcsia.gov.au/internet/facsinternet.nsf/disabilities/carers-special_disability_trusts.htm.

[107]   See for example: Ms M Walsh, Submission No 752, p 5; Ms N Brown, Submission No 951, p 14; Ms T Keith, Submission No 960, p 1; Ms F Anderson, Submission No 979, p 12; Ms S Maxwell, Transcript of Evidence, 26 September 2008, p 28.

[108]   Special Kidz Special Needs, Submission No 567, pp 8, 17.

[109]   Ms S Maxwell, Transcript of Evidence, 26 September 2008, p 28.

[110]   Parliament of Australia, Department of the Senate, Building Trust: Supporting Families through Disability Trusts, viewed 22 February 2008 at http://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/Completed_inquiries/2008-10/disability_trusts/report/index.

Chapter 6 Access to Supports and Services

[1]       See for example: Ms M Anderson, Submission No 331, p 2; Carer ACT, Submission No 702, pp 24, 34; Ms W Smulders, Submission No 855, p 3; Mr R Taylor, Submission No 923, p 2; Ms J Steepe, Submission No 1023, p 6; Ms M Major, Submission No 1163, pp 1-2; Ms C Masolin, Submission No 1090, p 3.

[2]       See for example: Ms K Batram, Submission No 33, p 1.

[3]       Ms K Ferguson, Transcript of Evidence, 1 October 2008, pp 39-40.

[4]       See for example: Ms C Sebbens & Mr J Doyle, Submission No 615, p 2.

[5]       Ms A-M MacArthur, Submission No 871, p 1.

[6]       Ms M Major, Submission No 1163, pp 1-2.

[7]       The Macarthur Aged and Disability Forum, Submission No 749, p 3. See also: Ms I Stockfeld, Transcript of Evidence, 12 August 2008, p 45.

[8]       Cardona B, Chalmers S, Neilson B, Diverse Strategies for Diverse Carers, The Cultural context of Family Carers in NSW (2006), p 52 (quoted in Submission No 758, p 1).

[9]       Ms S Crowe, Transcript of Evidence, 6 August 2008, p 80.

[10]     MND Australia, Submission No 568, p 9.

[11]     Carers WA, Submission No 566, p 17.

[12]     Carers SA, Submission No 684, p 20. See also: Ms S Ruggiero, Transcript of Evidence, 12 August 2008, p 12.

[13]     ACCNA-R is used to collect and record relevant information about the needs of both the care recipient and carer at a 'broad and shallow' level. It will be used within some of the Access Point Demonstration Projects. CENA-R is a carer-specific assessment which adds to the information about a carer to form a 'deep and narrow' view of the caring relationship and an assessment of a carer's support needs. See also: Australian Government, Department of Health and Ageing website, viewed 20 February 2009 at www.health.gov.au/internet/main/publishing.nsf/Content/ageing-twf-assessment-ncaf.htm.

[14]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 50. See also: Australian Government, Department of Health and Ageing website, viewed 20 February 2009 at www.health.gov.au/communitycare_thewayforward.

[15]     Australian Government Departments, (FaHCSIA, DoHA & DVA), Submission No 1109, p 45.

[16]     Carers ACT, Submission No 702, p 22. See also: Carers SA, Submission No 684, p 20; Carers Australia Transcript of Evidence, 28 November 2008, pp 10-11, 15.

[17]     The Perth Carer Forum Group, Submission No 983, p 3.

[18]     Disability Council of NSW, Submission No 662, p 9.

[19]     See for example: Ms J Mort, Submission No 44, p 1; Mr M McDonald & Ms J McDonald, Submission No 589, pp 1-2; Mr C Kellett, Submission No 707, pp 1-3; Mr T Stroud, Transcript of Evidence, 12 August 2008, p 59; Ms R Warmington, Transcript of Evidence, 13 August 2009, pp 14-15; A Prof R Parker, Transcript of Evidence, 26 November 2008, p 4.

[20]     Carers Australia, Submission No 699, p 37.

[21]     The Horsham Family Advisory Committee (Victoria), Submission No 1108, p 5.

[22]     Carers Australia, Submission No 699, p 37.

[23]     Carers Australia, Submission No 699, p 34.

[24]     Queensland Government, Department of Premier and Cabinet, Submission No 1203, p 15; Ms I Sullivan, Transcript of Evidence, 6 August 2008, pp 41-42; A-Prof R Parker, Transcript of Evidence, 26 November 2008, p 4.

[25]     Ms J Tongs, Transcript of Evidence, 3 December 2008, p 5.

[26]     Name withheld, Submission No 1304, p 5. See also: Ms S Freeburn, Transcript of Evidence, 6 August 2008, p 5.

[27]     Carers NT, Submission No 685, p 17. See also: Dr Z de Ishtar, Submission No 1279, pp 9-10.

[28]     See for example: Ms S Freeburn, Transcript of Evidence, 6 August 2008, p 5.

[29]     Carers Australia, Submission No 699, p 34.

[30]      Council of Australian Governments website, viewed 12 February 2009 at www.coag.gov.au/coag_meeting_outcomes/2008-11-29/index.cfm#indigenous.

[31]     Australian Bureau of Statistics, A Profile of Carers in Australia (2008), p 59.

[32]     See for example: Ms E Shields, Submission No 35, p 1; Mr R Morrison, Submission No 40, pp 1-2; Ms A Seales, Submission No 52, p 2; Ms B Fischer, Submission No 140, pp 1-2; Mr R Elliot, Submission No 253, p 2; Ms J Bellamy, Submission No 337, p 3; Mr F Hambridge, Submission No 355, p 1; Mr R Anderson, Submission No 360, p 2; Name withheld, Submission No 512, pp 3-4; Ms L Baker, Submission No 807, p 5; Name withheld, Submission No 904, pp 1-3; Ms J Parrott, Submission No 916, p 2; Ms E Walker, Submission No 973, pp 2-3; Mr D Gill, Submission No 1136, p 2; Ms M Major, Submission No 1163, pp 1-3; Ms M Mockler, Submission No 1253, p 1; Ms S Crowe, Transcript of Evidence, 6 August 2008, p 81; Ms S Mina, Transcript of Evidence, 12 August 2008, pp 48-49; Ms A Stacey, Transcript of Evidence, 13 August 2008, p 21; Ms J Hope, Transcript of Evidence, 9 October 2008, pp 2-5; Ms K Pritchard, Transcript of Evidence, 28 November 2008, pp 1-2.

[33]     Ms S Guest & Mr S Neal, Submission No 872, pp 4-5.

[34]     Ms Oi Yun Leongue, Submission No 1029, p 1.

[35]     Ms L Crumlin, Transcript of Evidence, 23 July 2008, p 50. See also: Disability Assistance for Shoalhaven, Submission No 256, p 2; Neuro Muscular Alliance Tasmania, Submission No 569, p 2; Carer Support Network of SA, Submission No 675, p 2; YNH Services Inc and Yarrawonga Mulwala Carers Support Group, Submission No 678, p 3; National Seniors Australia, Submission No 686, p 6; Child and Adolescent Mental Health Services Eastern Health (VIC), Submission No 762, pp 1-3; ANGLICARE Sydney, Submission No 769, pp 25-30; Queensland Government, Department of Premier and Cabinet, Submission No 1203, pp 17-18.

[36]     Defence Special Needs Support Group, Submission No 695, p 3.  See also: Carers Australia, Submission No 699, p 27.

[37]     The Hon Sue Ellery MLC, Minister for Child Protection; Communities; Women’s Interests; Seniors and Volunteering, Submission No 761, p 4.

[38]     See for example: Ms D Lamond, Submission No 46, p 4; Ms S Jakanski, Submission No 446, p 3; Carers SA, Submission No 684, p 22; National Seniors Australia, Submission No 686, p 6; MS Society of Tasmania, Submission No 747, p 3; St George Migrant Resource Centre, Submission No 746, p 37; Ms N Brown, Submission No 951, p 12; Ms R M Painter, Submission No 1143, p 2; Ms S Gambin, Transcript of Evidence, 12 August 2008, p 72.

[39]     Ms D Edwards, Submission No 159, p 5.

[40]     Ms B Schulz, Submission No 286, p 1.

[41]     Ms H White, Submission No 72, p 1.

[42]     Mr P Aris, Transcript of Evidence, 9 October 2008, p 23.

[43]     See for example: Ms M Bartlett, Submission No 58, p 1; Ms H White, Submission No 72, pp 1-2; Name withheld, Submission No 559, p 3.

[44]     See for example: Ms J Mann, Submission No 192, p 2; Ms C Franklin, Transcript of Evidence, 23 July 2008, p 45; Ms M Sweeney, Transcript of Evidence, 6 August 2008, p 89; Ms L Light, Transcript of Evidence, 6 August 2008, p 92; Mr T Stroud, Transcript of Evidence, 12 August 2008, p 49.

[45]     WA Government, Department for Communities, Submission No 761, p 4.

[46]     See for example: Ms H White, Submission No 72, p 1; Ms S Bailey, Submission No 370, p 2; Ms S Gibb, Submission No 1135, p 3; Ms J Waymouth, Transcript of Evidence, 23 July 2008, p 55; Mr W Haynes, Transcript of Evidence, 6 August 2008, p 65.

[47]     See for example: Ms E Shields, Submission No 35, p 1; Mr R Morrison, Submission No 40, p 2; Ms S Menegatos, Submission No 63, p 3; Ms J Whitehill, Submission No 65, p 2.

[48]     See for example: Ms H Davies, Submission No 28, p 1; Ms M Huddleston, Submission No 37, p 1; Ms P Haldane, Submission No 41, p 2; Ms D Osborne, Submission No 43, p 2; Ms J D’Angelo, Submission No 60, p 2; Ms A Bellchambers, Submission No 349, p 2.

[49]     Mr F Poole, Submission No 67, p 1. See also: Ms C Polak & Mr W Polak, Submission No 902, p 4; Ms B Cardona, Transcript of Evidence, 6 August 2008, p 17; Ms S King, Transcript of Evidence, 6 August 2008, p 34.

[50]     See for example: Ms A Bellchambers, Submission No 349, p 2; Ms S Scrivener & Mr D Scrivener, Submission No 1113, p 4; Ms S Crowe, Transcript of Evidence, 6 August 2008, pp 80, 84.

[51]     Ms C Dew, Transcript of Evidence, 6 August 2008, pp 45, 50.

[52]     Ms G Thyer, Submission No 679, p 2. See also: Ms E Ingram, Submission No 242, p 1.

[53]     Ms C Bazeley, Submission No 333, p 1.

[54]     See for example: Australian-Polish Community Services, Submission No 654, pp 1-2; Ethnic Disability Advocacy Centre, Submission No 787, p 17; Ms B Cardona, Transcript of Evidence, 6 August 2008, pp 17-18.

[55]     Ms B Cardona, Transcript of Evidence, 6 August 2008, p 17.

[56]     Carers NT, Submission No 685, p 17. Carers NT notes that local and culturally appropriate programs are beginning to be offered on some NT Indigenous communities e.g. the ‘Troopy Program’ described on p 22 of the submission.

[57]     Carers NT, Submission No 685, p 21.

[58]     Ms F Galbraith, Submission No 1089, p 3. See also: Family Advocacy, Submission No 768, p 3; Mr C Rook, Transcript of Evidence, 23 July 2008, p 42.

[59]     See for example: Ms P Haldane, Submission No 41, p 2; Ms L Bristow, Submission No 64, p 2; Mr T Vanderputt, Submission No 106, p 1; Ms S Vote, Submission No 134, p 1; Mr W Woolhouse, Submission No 201, p 1; Mr A Corbett, Submission No 251, p 1; Ms S Durkin, Submission No 329, p 2; Ms P Birch, Submission No 345, p 1; Ms E Forrester, Submission No 361, p 1; Ms A Esendag, Submission No 362, pp 1-2; Ms B McMahon, Submission No 705, p 1; Ms F Tountzis, Submission No 1140, p 2.

[60]     Community Aged Care Package (CACP); Extended Aged Care at Home (EACH); and Extended Aged Care at Home Dementia (EACHD).

[61]     See for example: Name withheld, Submission No 31, p 1; Ms B Borg, Submission No 76, p 2; Ms H Stone, Submission No 94, p 2; Ms S Vote, Submission No 134, p 1; Mr N Kaye, Submission No 143, p 2; Ms C Hunt, Submission No 271, p 2; Ms A Micallef, Submission No 272, p 2; Mr P Zachariadis, Submission No 279, p 2.

[62]     Mr N Sweeney, Submission No 133, p 1.

[63]     Mr F Poole, Submission No 67, p 1.

[64]     Ms D Lamond, Submission No 46, p 4.

[65]     Ms T Welstead, Submission No 616, p 1. See also: Ms L Leggo, Submission No 773, p 3; Ms C Paisley-Dew, Submission No 826, p 5.

[66]     Ms C Flavell, Submission No 186, p 3.

[67]     See for example: Name withheld, Submission No 22.1, p 1; Name withheld, Submission No 31, p 1.

[68]     See for example: Ms B Elliot, Submission No 36, p 1;  Mr R Spring, Submission No 49, p 1; Ms M Weller, Submission No 53, p 2; Ms M Bartlett, Submission No 58, p 2; Ms M Trewhella, Submission No 154, p 2; Ms S Smith, Submission No 901, p 1; Name withheld, Submission No 1295, pp 12-13.

[69]     See for example: Ms D McIntyre, Submission No 187, p 1; Name withheld, Submission No 512, p 3; Ms C Phillips, Submission No 755, p 2; Ms K Boyd, Submission No 783, p 2; Ms L Coyte, Submission No 868, p 1; Ms S Gibb, Submission No 1135, p 3; Name withheld, Submission No 1248, p 2.

[70]     Mr M Beardmore & Ms J Beardmore, Submission No 59, p 2.

[71]     Ms S Harmer, Submission No 430, p 2.

[72]     Ms N O’Boyle, Submission No 327, p 2.

[73]     Ms M Antonas, Submission No 299, p 1. See also: Ms M Alford, Transcript of Evidence, 13 August 2008, p 4.

[74]     Ms S Harmer, Submission No 430, p 1.

[75]     Ms C Pereira, Submission No 880, p 3.

[76]     Ms L Glover, Transcript of Evidence, 9 October 2008, p 46.

[77]     Carers ACT, Submission No 702, p 24.

[78]     Ms S Scrivener & Mr D Scrivener, Submission No 1113, p 3.

[79]     Ms C Perieira, Submission No 880, p 2. See also: Ms K Tucker, Submission No 321, p 2; Ms M Bohan, Transcript of Evidence, 12 August 2008, p 34; Ms N Sheldon, Transcript of Evidence, 12 August 2008, p 86.

[80]     Council of Australian Governments website, COAG Communiqué 2 October 2008, pp 3-4, viewed 18 February 2009 at www.coag.gov.au/coag_meeting_outcomes/2008-10-02/index.cfm#aged.

[81]     See for example: Carer Support and Respite Centre Carer Group, Submission No 585, p 7; Julia Farr Association, Submission No 689, p 3; Mr C Dalton, Submission No 972, pp 2-3; Exhibit No 18, Consumer-Directed care: A way to empower consumers, Alzheimer’s Australia Paper No 11, May 2007; Ms B Epstein-Frisch, Transcript of Evidence, 12 August 2008, pp 90-91.

[82]     The individual funding model can be used more widely for delivering government programs. For example, the Australian Government uses case based funding for employment services.

[83]     United Kingdom, Northwest Commissioning Roadmap website, viewed 17 February 2009 at www.northwestroadmap.org.uk/index.php.

[84]     In Canada ‘microboards’ - small groups of committed family and friends that join together with a person with disability to create a small non-profit society – commonly perform equivalent roles.

[85]     United Kingdom, In Control website, viewed 17 February 2009 at www.in-control.org.uk.

[86]     Carers WA, Submission No 566, p 6.

[87]     Julia Farr Association, Transcript of Evidence, 13 August 2008, p 91. See also: Julia Farr Association, Submission No 689, p 3; Ms F Anderson, Submission No 979, p 6; Ms L Kelly, Submission No 1173, p 2; Mr T Stroud, Transcript of Evidence, 12 August 2008, p 49; Brotherhood of St Laurence, Transcript of Evidence, 12 August 2008, pp 68-69.

[88]     Exhibit No 18, Consumer-Directed care: A way to empower consumers, Alzheimer’s Australia Paper No 11, May 2007, pp 8-9.

[89]     For the ACT www.dhcs.act.gov.au/disability_act/policies and for Victoria www.dhs.vic.gov.au/disability/supports_for_people/individualised_support_packages2, viewed 18 February 2009.

[90]     Exhibit No 18, Consumer-Directed care: A way to empower consumers, Alzheimer’s Australia Paper No 11, May 2007, p 9.

[91]     Australian Government Departments (FaHCSIA, DoHA & DVA) Submission No 1109.1, pp 1-3; Australian Government Departments (FaHCSIA, DoHA & DVA) Submission No 1109.2, pp 1-2; Australian Government Departments (FaHCSIA, DoHA and DVA), Transcript of Evidence, 28 November 2008, pp 20-21.

[92]     Australian Institute of Health and Welfare, Submission No 1033, p 19. See also: Ms E Fudge, Transcript of Evidence, 13 August 2008, pp 51-52.

[93]     Australian Institute of Health and Welfare, Submission No 1033, p 19.

[94]     Carers Victoria, Submission No 652, p 33.

[95]     See for example: Ms A Rea, Submission No 14, p 1; Mr K Hewitt, Submission No 328, p 1; Name withheld, Submission No 1038, p 4; Ms N Sheldon, Transcript of Evidence, 12 August 2008, p 86.

[96]     Carers Support Network of SA, Submission No 675, p 8.

[97]     Mr C Howe & Mr C Howe, Submission No 1193, p 2.

[98]     Ms P Bianchi, Submission No 809, p 3.

[99]     Ms J Lehmann, Submission No 1258, p 1.

[100]   See for example: Ms L Walmsley, Submission No 353, p 3; Ms M Van de Vusse, Submission No 443, p 2; Ms P Bodegraven, Submission No 509, p 2; Huntingdon’s Victoria, Submission No 670.2, pp 3-4; Young People in Nursing Homes National Alliance, Submission No 764, p 4; Ms E Scott, Submission No 839, p 7; Mr C Dalton, Submission No 972, p 2; Ms T Clough, Transcript of Evidence, 23 July 2008, p 44.

[101]   Australian Government, Department of Education, Employment and Workplace Relations website, viewed 16 March 2009 at www.deewr.gov.au/Skills/ProductivityPlaces/Pages/default.aspx.

[102]   Ms D Beccari, Submission No 102, p 2.

[103]   Australian Institute of Health and Welfare, Submission No 1033, p 2. See also: Mental Health Council of Australia, Submission No 682, p 8.

[104]   See for example: Ms A Bannigan, Submission No 706, pp 1-2; Ms K McCann, Submission No 751, p 4; Ms S Walden, Submission No 900, pp 3, 4; Ms G Hunter, Submission No 1090, p 1; Ms R Houston, Submission No 1148, p 2; Ms L Light, Transcript of Evidence, 6 August 2008, p 92.

[105]   See for example: Name withheld, Submission No 22, p 1; Ms K Tucker, Submission No 321, p 2; Ms N Green, Submission No 831, p 2; Ms J Walsh, Transcript of Evidence, 13 August 2008, p 26; Ms B Tickner, Transcript of Evidence, 20 August 2008, p 89.

[106]   Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs website; viewed 16 March 2009 at www.facs.gov.au/internet/facsinternet.nsf/housing/nav.htm.

[107]   See for example: Ms M Edwards, Submission No 30, p 1; Ms B Hunt, Submission No 348, p 1; Ms F Anderson, Submission No 979, p 6.

[108]   Australian Institute of Health and Welfare, Current and future demand for specialist disability services (2007), Disability services, Cat no DIS50, pp 77-78. See also: Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.2, p 4.

[109]   Australian Government, Department of Education, Employment and Workplace Relations, viewed 30 January 2009 at www.workplace.gov.au/NR/rdonlyres/37D9990A-A765-4580-BF02-5850A37AA77E/0/StrategypaperFinalRTF.rtf.

[110]   See for example: Ms J Johnson, Submission No 16, p 1; Ms J Poat & Mr W McGhie, Submission No 24, pp 1-4; Ms E Shields, Submission No 35, p 2; Mr R Morrison, Submission No 40, p 2; Ms A Ferguson, Submission No 45, p 1; Ms E Smalley, Submission No 105, p 1; Ms D Sullivan, Submission No 126, p 5; Ms E Shutt & Mr S Shutt, Submission No 310, p 2; Ms K Tucker, Submission No 321, p 2; Ms J Bellamy, Submission No 337, pp 1; Ms R May, Submission 351, p 1; Ms M-J Galiazzo, Submission No 359, pp 1-2; Ms L Wetherill, Submission No 1025, p 2; Ms S Schreiber, Transcript of Evidence, 13 August 2008, pp 22-23; Mr H Thomas, Transcript of Evidence, 13 August, pp 30-31.

[111]   Ms C Pereira, Submission No 880, p 3.

[112]   See for example: Nardy House, Submission No 17, p 3; Mr R Morrison, Submission No 40, p 2; Mr T Sexton & Ms R Sexton, Submission No 136, p 4; Ms P Bristow, Submission No 546, p 1; Ms J Barnes, Submission No 623, p 2; Ms M Turner, Submission No 715, p 1; Ms B Liskus, Submission No 720, p 1; Mr P Rankin,  Submission No 759, p 5; Ms M Rouse, Submission No 1142, p 3; Ms R A Houston, Submission No 1148, p 2; Ms L Downing, Ms S La Fontaine and Ms C Straw, Transcript of Evidence, 26 November 2008, pp 10-15.

[113]   Ms E Shields, Submission No 35, p 2. See also: ARAFMI QLD, Submission No 574, p 5; Mr K Matthias & Ms M Matthias Submission No 710, p 1; Ms M Ross, Submission No 713, p 1;

[114]   National Carers Coalition, Submission No 571, p 34.

[115]   Ms F Galbraith, Submission No 1089, p 1. See also: Ms K Tucker, Submission No 321, p 1; Ms M Anderson, Submission No 331, p 1; Ms A-M Newbold, Transcript of Evidence, 12 August 2008, p 98.

[116]   Ms S Hodgson, Transcript of Evidence, 9 October 2008, p 24. See also: Ms S Crowe, Transcript of Evidence, 6 August 2008, p 81.

Chapter 7 Employment and Education

[1]       Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0, p 51.

[2]       Ms R Kyne et al, Submission No 873, p 3.

[3]       See for example: Mr N Faint, Submission No 20, p 2; Ms J Roze, Submission No 485, p 4; Mr T Stroud, Transcript of Evidence, 12 August 2008, p 54.

[4]       Ms N Magnusson, Submission No 269, p 1.

[5]       See for example: Ms M Huddleston, Submission No 37, p 1; Ms L Belsham, Submission No 96, p 1; Ms L McIver, Submission No 191, p 1; Ms E Interlici, Submission No 209, p 1; Ms C Wood, Submission No 350, p 1; Ms C Hill, Submission No 1117, p 1.

[6]       See for example: Ms L Kschenka, Submission No 33, p 3; Mr C Coleman, Transcript of Evidence, 12 August 2008, p 27; Ms J English, Transcript of Evidence, 12 August 2008, p 62; Mr G Moore, Transcript of Evidence, 12 August 2008, p 63.

[7]       Ms M Bartlett, Submission No 58, p 1.

[8]       Taskforce on Care Costs (2007), Report: the hidden face of care: combining work and caring responsibilities for the aged and people with a disability, pp 22-23. See also: Mr C Coleman, Transcript of Evidence, 12 August 2008, p 27.

[9]       Carers ACT, Submission No 702, p 16.

[10]     See for example: Ms B Fischer, Submission No 140, p 1; Ms J Lummas, Submission No 236, p 2; Carers Victoria, Submission No 652, p 15; Ms C Thomson, Transcript of Evidence, 6 August 2008, p 75; Ms A Wilson Sturm, Transcript of Evidence, 9 October 2008, p 39.

[11]     Ms D Edwards, Submission No 159, p 3.

[12]     Ms A Wilson Sturm, Transcript of Evidence, 9 October 2008, p 39.

[13]     Edwards et al (2008), Australian Institute of Family Studies, Research Report No 16, The Nature and Impact of Caring for a Family Member with a Disability, pp 105-106. [Note: Due to relatively small numbers of male carers included in the survey, analysis of data was restricted to female carers only].

[14]     Australian Institute of Family Studies, Submission No 744, p 11.

[15]     Australian Institute of Family Studies, Submission No 744, p 11.

[16]     Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0, p 51.

[17]     Edwards et al (2008), Australian Institute of Family Studies, Research Report No 16, The Nature and Impact of Caring for a Family Member with a Disability, pp 105-106.

[18]     Ms V Simpson, Submission No 260, p 4.

[19]     See for example: Mr J Halford, Submission No 250, pp 7-8; National Seniors Australia, Submission No 686, p 6; Australian Congress of Trade Unions, Submission No 725, p 1; Ms J Beattie, Submission No 1045, p 3; Mr R Sinclair, Transcript of Evidence, 13 August 2008, p 3.

[20]     Ms J Poat & Mr W McGhie, Submission No 24, p 2.

[21]     Ms N Hughes, Submission No 830, p 3.

[22]     Australian Institute of Family Studies, Submission No 744, p 11.

[23]     See for example: Ms A Rea, Submission No 14, p 1; Ms J Beardmore & Mr M Beardmore, Submission No 59, pp 1-2; Ms T A T Nguyen, Submission, No 79, pp 1-2; Mr I Morris, Submission No 162, pp 1-2; Ms S Mortimer, Submission No 332, pp 1-2; Mr M Aldred & Ms H Aldred, Submission No 336, p 1; Ms S Holmes, Submission No 357, p 1; ANGLICARE Sydney, Submission No 769, p 8; Ms J Parrott, Submission 916, p 1; Ms N Brown, Submission No 951, p 9; Ms F Anderson, Submission No 979, p 8; Alzheimer’s Australia, Submission No 1002, p 13; Ms G Wilson-Burns, Submission No 1080, p 9; Ms T McLure, Submission No 1200, p 2; Ms M-L Carter, Submission No 1291, pp 10, 13; Ms G Pierce, Transcript of Evidence, 12 August 2008, p 39.

[24]     National Carers Coalition, Submission No 571, p 5.

[25]     Ms J Tops, Transcript of Evidence, 15 October 2008, p 9.

[26]     Ms P Chan, Submission No 261, p 1.

[27]     See for example: Mr J Kelly, Submission No 1041, p 1; Ms S Gibb, Submission No 1135, p 3.

[28]     Ms C Pereira, Submission No 880, p 2.

[29]     Ms S Menegatos, Submission No 63, p 2.

[30]     Ms M Hart & Mr R Hart, Submission No 1174, p 1.

[31]     Ms A Bennett Roberts, Submission No 1138, pp 1-2.

[32]     Ms L Coyte, Submission No 868, pp 1-2.

[33]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109.1, p 7.

[34]     Ms H McDougall, Transcript of Evidence, 1 October 2008, p 3.

[35]     See for example: Mr L Wheaton & Ms J Wheaton, Submission No 190, p 1; Special Kidz Special Needs, Submission No 567, p 10; Carers Victoria, Submission No 652, p 25; Carers SA, Submission No 684, p 19; MS Australia, Submission No 692, p 22; Carers Australia, Submission No 699, pp 16-17; Ms J Tams, Submission No 908, p 8; Ms H Johnson, Submission No 1178, p 5.

[36]     Taskforce on Care Costs (2006), Where to Now? (Final Report), p 6.

[37]     See for example: Carers Victoria, Submission No 652, p 20; Human Rights and Equal Opportunities Commission, Submission No 999, p 14.

[38]     See for example: Ms E Scott, Submission No 839, p 5; Ms C Masolin, Submission No 1190, p 2; Ms W L Cheung, Transcript of Evidence, 12 August 2008, p 41.

[39]     Ms E Scott, Submission No 839, p 5.

[40]     See for example: Name withheld, Submission No 500, p 16; Ms K O’Dea, Submission No 556, p 5; Ms M Cochrane, Submission No 824, pp 1-2; Mr C Coleman, Transcript of Evidence, 12 August 2008, pp 26-27; Ms H Johnson, Transcript of Evidence, 12 August 2008, p 46.

[41]     See for example: Ms D Galt, Submission No 861, p 1; Name withheld, Submission No 883, p 3; Mr K Wood, Submission No 1007, p 2.

[42]     Ms R Papavasiliou, Submission No 1009, p 1.

[43]     Ms C Bortolot, Submission No 1124, p 2.

[44]     Mr K Wood, Submission No 1007, p 1.

[45]     See for example: Carers ACT, Submission No 702, p 16; Dr M Summers, Transcript of Evidence, 12 August 2008, p 87.

[46]     Name withheld, Submission No 367, p 3.

[47]     Name withheld, Submission No 367, p 4.

[48]     See for example: Ms B Kelly, Submission No 12, p 1; Mr I Morris, Submission No 162, p 2; Name withheld, Submission No 244, p 12; Ms S Jalanski, Submission No 446, p 3; Carers ACT, Submission No 702, p 15; Anglicare Canberra and Goulburn, Submission No 724, p 10; Australian Congress of Trade Unions, Submission No 725, p 6; Ms A-M Newbold, Submission No 1042, p 2; Families Australia, Submission No 1088, pp 15-16, 21.

[49]     Ms S Jalanski, Submission No 446, p 3.

[50]     Human Rights and Equal Opportunities Commission, Submission No 999, p 14.

[51]     Ms R Stuckey, Transcript of Evidence, 12 August 2008, pp 79-84.

[52]     MS Australia, Submission No 692, pp 20-21.

[53]     See for example: Australian Congress of Trade Unions, Submission No 725, p 3; Human Rights and Equal Opportunities Commission, Submission No 999, pp 11-13; Ms J Bourke, Transcript of Evidence, 6 August 2008, p 70.

[54]     Human Rights and Equal Opportunities Commission, Submission No 999, pp 10-11.

[55]     Amendments to the Fair Work Bill 2008 made during drafting of this report are of relevance to the Inquiry. Amendments to sections 65 ‘request for flexible work arrangements’ are considered later in the chapter.

[56]     The Parliament of Australia, House of Representatives, Fair Work Bill (2008), Section 61, p 72. See also: Australian Government National Employment Standards, viewed 2 March 2009 at www.workplace.gov.au/NR/rdonlyres/1955FD28-3178-44CD-9654-56A3D5391989/0/NationalDiscussionPaper_web.pdf.

[57]     See for example: Carers NSW, Submission No 661, p 10; Human Rights and Equal Opportunities Commission, Submission No 999, pp 14.

[58]     The Parliament of Australia, House of Representatives, Fair Work Bill (2008), Section 65, pp 76-77. See also: Australian Government National Employment Standards, p 12, viewed 2 March 2009 at www.workplace.gov.au/NR/rdonlyres/1955FD28-3178-44CD-9654-56A3D5391989/0/NationalDiscussionPaper_web.pdf.

[59]     Australian Congress of Trade Unions, Submission No 725, p 4. See also: Carers Victoria, Submission No 652, p 21; Carers Australia, Submission No 699, p 16; Human Rights and Equal Opportunities Commission, Submission No 999, p 11.

[60]     Carers Victoria, Submission No 652, p 21.

[61]     The Parliament of Australia, House of Representatives, Fair Work Bill (2008), Section 97, p 103. See also Australian Government, National Employment Standards, p 30, viewed 22 February 2009 at www.workplace.gov.au/NR/rdonlyres/1955FD28-3178-44CD-9654-56A3D5391989/0/NationalDiscussionPaper_web.pdf.

[62]     Australian Congress of Trade Unions, Submission No 725, p 5.

[63]     Human Rights and Equal Opportunities Commission, Submission No 999, p 12. See also: Carers Australia, Submission No 699, p 16; Australian Council of Trade Unions, Submission No 725, pp 5-6.

[64]     Human Rights and Equal Opportunities Commission, Submission No 999, pp 12-13. See also: Carers Australia, Submission No 699, p 16; Australian Council of Trade Unions, Submission No 725, p 6.

[65]     Carers Victoria, Submission No 652, p 21.

[66]      Parliament of Australia website, viewed 20 March 2009 at: www:parlinfo.aph.gov.au/parlInfo/download/legislation.

[67]     See for example: Name withheld, Submission No 367, pp 4, 6; Carers Victoria, Submission No 652, p 22; Ms E Scott, Submission No 839, p 6; Ms R Quaife, Submission No 1125, p 2; Ms P Webster, Transcript of Evidence, 28 November 2008, p 10.

[68]     See for example: Ms D Robins, Submission No 742, p 2; Families in Partnership Cooperative, Submission No 847, p 3; Mr K Wood, Submission No 1007, p 2; Ms C Masolin, Submission No 1190, p 2.

[69]     ANGLICARE Sydney, Submission No 769, pp 21-22.

[70]     Name withheld, Submission No 500, p 28. See also: Ms E Scott, Submission No 839, p 6.

[71]     MS Australia, Submission No 692, p 21.

[72]     Australian Government, Department of Education, Employment and Workplace Relations website, viewed 23 March 2009 at http://www.deewr.gov.au/Employment/NewEmployment/Pages/default.aspx.

[73]     Australian Government Workplace Website, viewed 15 February 2009 at http://www.workplace.gov.au/workplace/Publications/PolicyReviews/NewEmploymentServices/InnovationFund.htm.

[74]     Australian Government, Department of Education, Employment and Workplace Relations website, viewed 23 March 2009 at www.deewr.gov.au/Employment/NewEmployment/Pages/EmployerBrokers.aspx#members.

[75]     From 1 July 2009 the current Job Network and Disability Employment Network will be replaced by Job Sevices Australia. As with the Employment Broker and Innovation Fund, services providers will be selected following a competitive tender process. At the time of drafting the successful tender applicants have not been announced.

[76]     Australian Government website, viewed 3 March 2009 at www.workplace.gov.au/workplace/Programmes/.

[77]     See for example: Ms K Stephen, Submission No 115, p 2; Ms D Vella, Submission No 273, p 1; Ms S Harris, Submission No 811, p 1; Ms M King & Mr R King, Submission No 817, p 2; Ms J Piesse O’Sullivan, Submission No 945, pp 1-2; Ms R Huisman, Submission No 1144, p 4.

[78]     Ms D Edwards, Submission No 159, p 7.

[79]     Ms C Masolin, Submission No 1190, p 2.

[80]     Ms V Evans, Submission No 1201, p 1.

[81]     See for example: Committed about Securing Accommodation for People with Disabilities, Submission No 577, pp 4-6; Carers Support Network of South Australia, Submission No 675, p 3.

[82]     Mr J Kelly, Submission No 1041, p 1.

[83]     Ms F Young, Submission No 181, p 4.

[84]     Mr J Wilkinson, Submission No 1035, p 8.

[85]     Mr T Stroud, Submission No 549, p 2.

[86]     Australian Council of Trade Unions, Submission No 725, p 7.

[87]     Australian Council of Trade Unions, Submission No 725, p 8.

[88]     Parents Returning to Earning website, viewed 11 March 2009 at www.parentsreturntowork.net.au/parents/about.asp.

[89]     See for example: Mr A Leach, Submission No 34, p 1; Ms M-J Galiazzi, Submission No 359, p 2; Ms L Krupjak, Submission No 365, p 1; Carers Victoria, Submission No 652, pp 14-15; Mr P Laughton, Submission No 770, pp 1-2.

[90]     Carers WA, Submission No 566, p 18.

[91]     Carers Victoria, Submission No 652, pp 14-15.

[92]     Mr G Ozols, Submission No 18, p 1.

[93]     Ms J Mann, Submission No 192, p 1.

[94]     Ms L Aspinall, Submission No 1189, p 2.

[95]     See for example: Mr A Leach, Submission No 34, p 1; Ms M-J Galiazzi, Submission No 359, p 2; Ms L Krupjak, Submission No 365, p 1; Mr P Laughton, Submission No 770, pp 1-2.

[96]     Carers Victoria, Submission No 652, p 15.

[97]     See for example: Mr I Radford & Ms J Radford, Submission No 4, p 1; Gippsland Carers Association, Submission No 660, p 8; Ms A Geach-Bennell, Submission No 1022, p 2; Ms K Evans, Submission No 1305, p 1; Ms S Maxwell, Transcript of Evidence, 26 September 2008, p 28; Ms R Rycen, Transcript of Evidence, 9 October 2008, p 27.

[98]     Taskforce on Care Costs, Submission No 23 (Attachment 1), p 15.

[99]     Ms N Brown, Transcript of Evidence, 6 August 2008, p 47.

[100]   Ms R Papavasiliou, Submission No 1009, p 1.

[101]   Ms K Szukalska, Transcript of Evidence, 26 September 2008, p 39.

[102]   NSW Youth Advisory Council, Submission No 789, p 2.

[103]   Definitions of young carer vary. For example, the Australian Bureau of Statistics Survey of Disability, Ageing and Carers consider young carers to be carers aged 15-24 years. Carers NSW, Submission No 661, p 24 provides the following definition ‘A young carer is a child or young person 25 years or under who provides support for a family member who has a long term disability, mental illness, other illness, drug or alcohol problem.’

[104]   Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0, p 51.

[105]   Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs website, Young Carers Research Project: Final Report, viewed 23 February 2009 at  http://www.facsia.gov.au/internet/facsinternet.nsf/disabilities/carers-young_carers_report.htm#exec. 

[106]   See for example: Rotary Club of Mount Eliza, Submission No 572, pp 1-4; Ms M Walsh, Submission No 752, p 3; Mr C Larkman, Submission No 1066, p 2; Mr W Wilton, Transcript of Evidence, 26 July 2008, pp 36-48; Ms R Foldesi, Transcript of Evidence, 26 July 2008, pp 36-48; Prof B Cass, Transcript of Evidence, 6 August 2008, p 73.

[107]   Name withheld, Submission No 875, p 2.

[108]   Mr W Wilton, Transcript of Evidence, 26 July 2008, p 37.

[109]   See for example: Carers WA, Submission No 566, p 5; National Disability Services, Submission No 579, p 8; Prof B Cass, Transcript of Evidence, 6 August 2008, p 74; Ms R Warmington, Transcript of Evidence, 13 August 2008, p 16; Ms C Alliston, Transcript of Evidence, 13 August 2008, p 52.

[110]   Ms J Wallent, Submission No 834, p 2.

[111]   Ms P Berrutti, Submission No 429, p 1.

[112]   ACT Government, Submission No 1000, p 6.

[113]   Ms M Malak, Transcript of Evidence, 6 August 2008, pp 46-47.

[114]   Mr J Woodgate, Submission No 1126, p 2.

[115]   Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 32.

[116]   Carers Australia, Submission No 699, p 42.

Chapter 8 Health and Wellbeing

[1]       Australian Bureau of Statistics (2008), A Profile of Carers in Australia, 4448.0, p 38.

[2]       Australian Unity Wellbeing Index (2007), Survey 17.1, The Wellbeing of Australians – Carer Health and Wellbeing; Australian Institute of Family Studies (2008), The Nature and Impact of Caring for Family Members with a Disability in Australia, Research Report No 16.

[3]       Australian Unity Wellbeing Index (2007), Survey 17.1, The Wellbeing of Australians – Carer Health and Wellbeing, pp vi-vii.

[4]       Australian Institute of Family Studies (2008), The Nature and Impact of Caring for Family Members with a Disability in Australia, Research Report No 16, p 98. See also: Australian Institute of Family Studies, Submission No 744, pp 2-8.

[5]       See for example: Ms D Osborne, Submission No 43, pp 1-2; Mr D Williams, Submission No 344, pp 1-2; Ms P Birch, Submission No 345, p 1; Mr R Sinclair, Transcript of Evidence, 13 August 2008, p 2.

[6]       Carers ACT, Submission No 702, p 28.

[7]       Mr S Dodd & Ms H Dodd, Submission No 1196, p 1.

[8]       Ms L Formosa, Submission No 1296, p 2.

[9]       Ms D Vella, Submission No 273, p 2.

[10]     See for example: ARAFMI QLD, Submission No 574, pp 3-4; BrainLink Services, Submission No 690, pp 3-4; Ms J Steepe, Submission No 1023, p 10.

[11]     Ms T Cammilleri, Submission No 48, p 1.

[12]     Ms M Cardomone, Submission No 799, p 2.

[13]     Name withheld, Submission No 244, p 3.

[14]     Australian Unity Wellbeing Index (2007), Survey 17.1, The Wellbeing of Australians – Carer Health and Wellbeing, pp vi-vii.

[15]     See for example: Mr J Halford, Submission No 250, p 6; Mr R Regal, Submission No 335, p 4; Ms J Edwards, Submission No 564, p 1; Ms N Hughes, Submission No 830, p 1; Ms M Parnell, Submission No 849, pp 7-9; Mr L Hawksworth, Submission No 1018, p 1; Mr C Coleman, Transcript of Evidence, 12 August 2008, pp 29-30.

[16]     Special Kidz Special Needs, Submission No 567, p 18.

[17]     Ms L Belsham, Submission No 96, p 1.

[18]     Ms J Johnson, Submission No 16, p 1.

[19]     Name withheld, Submission No 650, p 1.

[20]     Ms R Quaife, Submission No 1125, p 1.

[21]     Mr N Faint, Submission No 20, p 1.

[22]     Ms J Churchill, Submission No 66, p 1.

[23]     See for example: Ms M Nazzari, Submission No 100, p 1; Ms A Hewat, Submission No 866, p 8.

[24]     See for example: Ms L McIver, Submission No 191, p 3; Ms Y Wathen, Submission No 723, pp 1-2; Name withheld, Submission No 850, p 1; Ms D Le Cornu, Submission No 887, p 1.

[25]     Ms C Paisley-Dew, Submission No 826, p 4.

[26]     See for example: Ms J Harrison, Submission No 301, p 2; Ms S Durkin, Submission No 329, p 2; National Seniors Australia, Submission No 686, p 3; Palliative Care Australia, Submission No 688, p 10; Ms T Hayes, Submission No 933, p 4; Ms J Lehmann, Submission No 1258, p 5; Ms D Stewart, Transcript of Evidence, 13 August 2008, p 27.

[27]     Carers ACT, Submission No 702, p 4.

[28]     NSW Government, Submission No 1278, p 13.

[29]     Carers Australia, Submission No 699, p 21.

[30]     Australian Government, Department of Health and Ageing website, viewed 1 March 2009 at www.health.gov.au/epc.

[31]     Australian Government Departments (FaHSCIA, DoHA & DVA), Submission No 1109, p 23.

[32]     See for example: Ms C Phillips, Submission No 755, p 2; Mr A Skimin & Ms K Skimin, Submission No 810, p 2; Ms L Symons, Submission No 1043, p 2; Ms J Beattie, Submission No 1045, pp 3-4; Ms N Jensen, Submission No 1052, p 1.

[33]     Ms D Etherington, Submission No 1204, p 1.

[34]     See for example: Ms M-J Galiazzo, Submission No 359, p 1; Ms C Franze, Submission No 622, p 3; Ms J Johnson, Submission No 1178, p 6; Ms M Anderson, Transcript of Evidence, 12 August 2008, p 44.

[35]     National Carers Coalition, Submission No 571, p 30.

[36]     Ms K Beamish, Submission No 55, p 1.

[37]     Ms J Small, Submission No 110, p 2.

[38]     Ms D Etherington, Submission No 1204, p 1.

[39]     Name withheld, Submission No 244, p 6.

[40]     See for example: Ms L Buckingham. Submission No 109, pp 1-2; Ms S Berardi, Submission No 550, p 1; Ms B Allen, Submission No 612, p 1; Ms G Esson, Submission No 647, p 3; Name withheld, Submission No 860, p 2; Ms D Galt, Submission No 861, p 1; Ms M Quinn, Submission No 867, p 1; Ms E Tielmann, Submission No 907, p 2; Ms G Hunter, Submission No 1090, pp 1-2; Ms D Etherington, Submission No 1204, p 2; Name withheld, Submission No 1304, p 1.

[41]     Temporary cessation of care provisions apply where the cessation of care is a 24 hour period. Part days do not count as temporary cessation of care.

[42]     Ms E Walker, Submission No 973, p 3. See also: Community Options (Dementia Respite Albury and District), Submission No 790, p 2; Ms N Hughes, Submission No 830, p 4; Mr M Tonissen & Ms R Tonissen, Submission No 1111, p 2.

[43]     Ms A Geach-Bennell, Submission No 1022, p 2.

[44]     Ms D Purcell, Submission No 2, p 1.

[45]     Ms L Walker, Submission No 470, p 1.

[46]     Ms B Bale, Submission No 930, p 1.

[47]     See for example: Ms W Bennett-Hall, Submission No 103, p 2; Ms A Dix, Submission No 431, p 2; Ms L McCulloch, Submission No 471, p 1; Ms A McArthur, Submission No 491, p 1; MND Australia, Submission No 568, p 25; Daughters in Demand, Submission No 611, p 2; Huntington’s Australia, Submission No 670.2, p 1.

[48]     Australian Institute of Health and Welfare, Submission No 1033, p 5.

[49]     Ms D Sullivan, Submission No 126, p 6.

[50]     Ms A McArthur, Submission No 491, p 1.

[51]     Mr L Wheaton & Ms J Wheaton, Submission No 190, p 3. See also: Ms A Dix, Submission No 431, p 3.

[52]     See for example: Ms A Silvey, Submission No 267, p 2; Ms J Wallent, Submission No 834, p 2; Ms T Hayes, Submission No 933, p 4; Ms M Hart & Mr R Hart, Submission No 1174, p 2;

[53]     See for example: Ms J Guilfoile, Submission No 160, p 2; Ms K Small, Submission No 165, p 1; Ms L Ruggiero, Transcript of Evidence, 12 August 2008, p 12; Ms S Gambin, Transcript of Evidence, 12 August 2008, pp 74-75; Ms V Cagliuso, Transcript of Evidence, 13 August 2008, p 21; Ms J Milburn, Transcript of Evidence, 13 August 2008, p 25; Ms K Strohm, Transcript of Evidence, 13 August 2008, pp 58-65.

[54]     Australian Institute of Family Studies, Submission No 744, p 5.

[55]     Ms B Tickner, Submission No 98, p 1.

[56]     Ms B Schulz, Submission No 286, p 1.

[57]     Ms M Ingham, Submission No 505, p 2.

[58]     Ms A Dix, Submission No 431, p 1. See also: Ms J Small, Submission No 110, p 2.

[59]     See for example: Name withheld, Submission No 22, p 1; Ms L Kschenka, Submission No 32, p 1; Ms C Polidano, Submission No 259, pp 2-3; Perth Carer Forum Group, Submission No 983, pp 5-6.

[60]     Ms L McCulloch, Submission No 471, p 1.

[61]     Siblings Australia, Submission No 701, p 1.

[62]     Ms R Foldesi, Transcript of Evidence, 23 July 2008, p 47.

[63]     Ms J Sykes, Submission No 237, p 1. See also: Ms J Small, Submission No 110, p 2; Ms A Dix, Submission No 431, p 1; Name withheld, Submission No 500, p 26.

[64]     Ms J Guilfoile, Submission No 160, p 3.

[65]     Carer Support Network of SA, Submission No 675, p 12. See also: Ms N Tingey, Submission No 38, p 1; Ms H Parker, Submission No 1076, p 1; Ms S Gambin, Transcript of Evidence, 12 August 2008, p 72.

[66]     Carer Support Network of South Australia, Submission No 675, p 12.

[67]     Name withheld, Submission No 1304, p 1.

[68]     Ms C Cornish, Submission No 1150, p 2.

[69]     Life Goes On, Submission No 257, pp 1-2.

[70]     Mr L Wheaton & Ms J Wheaton, Submission No 190, p 3.

[71]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 26. See also: www.health.gov.au/internet/main/Publishing.nsf/Content/ageing-carers-nrcp.htm.

[72]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 33. See also: www.facsia.gov.au/internet/facsinternet.nsf/via/frsp/$file/FRSC_Brochure.pdf.

[73]     Carers WA, Submission No 566, pp 2, 22; Carers Victoria, Submission No 652, p 26.

[74]     Carers WA, Submission No 566, pp 6, 22.

[75]     Including occupational therapists and Aboriginal and Torres Strait Islander health workers with specific mental health qualifications. See Australian Government, Department of Health and Ageing website, viewed 16 March at www.health.gov.au/internet/main/publishing.nsf/Content/mental-boimhc-ataps.

[76]     Australian Government, Department of Health and Ageing website, viewed 16 March at www.health.gov.au/internet/main/publishing.nsf/Content/mental-boimhc-ataps.

[77]     Ms J Sykes, Submission No 237, p 1.

[78]     Ms D Edwards, Submission No 159, p 3. See also: Ms S Hewett, Submission No 298, p 1.

[79]     Ms J Guilfoile, Submission No 160, p 4.

[80]     Ms R Morrison, Submission No 40, p 1.

[81]     Ms N Hughes, Submission No 830, p 3.

[82]     Name withheld, Submission No 1087, p 5.

[83]     Ms J Burke, Submission No 99, p 1.

[84]     Ms W Bennett-Hall, Submission No 103, p 2.

[85]     Ms J Roze, Submission No 485, p 5.

[86]     Community Options, Dementia Respite Options, Albury & District, Submission No 790, p 6.

[87]     Ms V Thomson, Submission No 300, p 2.

[88]     Queensland Government, Department of the Premier and Cabinet, Submission No 1203, p 2. See also: Carers Australia, Submission No 699, p 18; Carers South Australia, Submission No 684, p 6; Aged and Community Services Australia, Submission No 1085, p 3.

[89]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 44.

[90]     Australian Government Departments (FaHCSIA, DoHA & DVA), Submission No 1109, p 44.

[91]     Australian Government Department of Prime Minster and Cabinet, Social Inclusion website, viewed 10 March 2009 at www.socialinclusion.gov.au/pmc_social_inclusion_unit.htm and http://www.socialinclusion.gov.au/default.

Appendix D - Payment costs and recipients 2006-07[1] -  

[1]       Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs, Australia’s Future Tax System, Pension Review Background Paper, August 2008.

Appendix E - Income support payments as at 1 July 2008[1]

[1]       Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs, Australia’s Future Tax System, Pension Review Background Paper, August 2008.

Appendix F - Supplementary payments as at 1 July 2008[1]

[1]       Australian Government, Department of Families, Housing, Community Services and Indigenous Affairs, Australia’s Future Tax System, Pension Review Background Paper, August 2008.

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